Forum Replies Created
January 30, 2020 at 2:19 am in reply to: 2020 Annual Conference Patient Scholarship – Deadline Monday Feb 3rd #99637
Some more info all and remember please that the deadline to apply is Feb 3rd so very time sensitive!
2020 Annual Conference Patient Scholarship:
CCF is very pleased to provide travel scholarships for patients to attend the Annual Conference. Awards will cover costs for registration, hotel, on-site meals, and transportation. Due to the high level of interest and limited number of scholarships available, awardees will be randomly selected from the applications received. We sincerely wish we could provide financial support to everyone in need and hope to obtain more funding in the future.
•Applicants worldwide are encouraged to apply
•Past scholarship recipients are NOT eligible to apply
•Because funds are limited, we ask that you only apply if you have significant financial need.
Deadline to Apply: Monday, February 3rd
Award Notification: Friday, February 7th
GavinJanuary 23, 2020 at 9:45 am in reply to: Until we meet again my love first six months of being #99609
Please also accept my deepest sympathies on the passing of your beloved husband Deen. I am so sorry to hear of this news from you. I wish that at times like this there was something that I could say that would help ease the pain that you feel right now but know there are now words. Please know that my thoughts are with you and your family right now.
My best to you,
GavinJanuary 9, 2020 at 10:21 am in reply to: Presentation on genomic mutations and targeted therapy options #99539
Thanks for that Tarheelll.
I did a search on the boards for you using the search forum function and it threw up these discussions here –
Not a lot to go on there I know. So I did another one for you on just 5FU and it came up with this, much more here.
I hope that some of that will be of use and interest to you. And I will be keeping my fingers crossed for you as well with regards to the treatment and hope that it works very well indeed.
My best wishes to you,
I am so very sorry indeed to hear of the passing of your mum. Please accept my sincerest condolences. I lost my mum too just over a year ago so know how you are feeling right now. I wish there was something that I could say that would help ease the pain that you feel right now but know there are no words.
Your mum did fight a long hard fight and both you and your mum together did not give up and kept looking for answers. I know how proud of you she would be in your quest to help her through all of this and to deal with it all.
My thoughts are with you and your family right now.
GavinDecember 16, 2019 at 1:00 pm in reply to: Ciitizen Webinar – Take Control of Your Health Data #99440
Just a quick reminder about the Citiizen webinar on the 18th for those who may have missed the details about it. Further info and registration for it can be found in this link here –
A quick reminder everyone that this webinar is tonight for those that are interested in it. The details are in the first post on this thread.
To the top once again as the webinar is upcoming soon. Details in the link below for those interested.
Congrats to you my friend! 10 years is a long time and as you say, so much has happened to you in that time. You have certainly went out there and grabbed life by the horns and done so much in that time so further kudos to you for that too. And you even made it all the way over here to my side of the pond and now know what it means to get some scran!!!
You along with everyone else here are most certainly not statistics and as I always said, stats are just there to be broken anyway! Yes much has changed here in the last 10 years and sadly many from back then are not with us now. But today is a good day Randi and Lainy certainly would say to you to go girl! Love hearing stories such as yours and I do hope that others will read it too. As for sure you will inspire many many people who do.
My best wishes and celebratory hugs to you Randi!
THought I would bring this one to the top again in case anyone missed it.
I too am so sorry to hear of the passing of your mum, please accept my sincerest condolences to you and your family at this time. Having lost my dad to this disease in 2009 I know how you feel and what you are going through right now. But please do not beat your self up about this and what could have been or any possible misdiagnosis of your mum.
Mary is right about how this cancer is unpredictable at the best of times and disease progression can occur very quickly for some people or not so much for others. In my dads case, he passed away 18 months after diagnosis. None of us can say for sure what happened to your mum as we are not medical professionals, but one thing I can say for sure is that you did everything you could to help your mum in her fight with CC and to help her in every way possible and I know how much that would have meant to her.
I also lost my mum in November of last year and she like your mum was the matriarch of our small family. Again from my own experiences I can tell you that in time you will look back on the much more happier memories that you have of your mum. It will take time though and this period is different for everyone, but my advice would be to not focus on what might have been or could have been as we just do not know. Please look after yourself and know that we are here for you and my thoughts are with you and your family right now.
My best wishes to you,
GavinOctober 28, 2019 at 10:17 am in reply to: Phase 2 trail for CC shows promising results for pemigatinib #99225
Thanks for posting that Penny!
Thanks for that Penny. And I do agree so much with Mary on Asprin use as it can do severe damage to the stomach and does have risks involved with regular use of it. I took it years ago as a standard pain killer sometimes for sore heads etc and years later ended up in hospital with a stomach ulcer that burst. Was not nice to say the least and I still have to take medication now to keep it in check even after all of these years.
It was Oktoberfest in Covington with polkas, wienerschnitzel, lederhosen and beer galore
Video from ESMO with Prof Valle.
Juan Valle reports on key results from ESMO Congress 2019 on LBA10_PR: ClarIDHy: A global, phase 3, randomized, double-blind study of ivosidenib (IVO) vs placebo in patients with advanced cholangiocarcinoma (CC) with an isocitrate dehydrogenase 1 (IDH1) mutation Produced by the European Society for Medical Oncology https://oncologypro.esmo.org