gavin

Forum Replies Created

Viewing 15 posts - 46 through 60 (of 6,105 total)
  • Author
    Posts
  • in reply to: Hello from Massachusetts #98105
    gavin
    Moderator

    Hi Janice,

    Feeling overwhelmed with all of this is so normal, we as carers have all been there where you are right now. I was my dads carer for 18 months as he fought CC and was my mums carer for 12 years. She had COPD and passed away in Nov last year so I so know what you feel about feeling overwhelmed. Something or rather someone who may be able to help you deal with this feeling is Dr Giles and submitting a question to him. He has helped a lot of the members here and their families deal with the psychological aspects of all things CC related, caring, dealing with emotions etc and he may be of use to you just now.

    Something maybe for you to think about perhaps? If so, he can be contacted through the “Ask a Question” link that can be found on this link here –

    https://cholangiocarcinoma.org/for-patients/ask-dr-giles/

    Mary’s suggestion of a CC mentor for you is excellent one as well, and of course, you have all of us for support too so please keep on coming back here and we will help if we can.

    My best to you and your mum,

    Gavin

    in reply to: Mom is about to begin Gemcitabine and Cisplatin… #98104
    gavin
    Moderator

    You’re most welcome Janice. Just hope that some of that info is of use to you! Let me know if I can help any more and I sure will if I can. However, translating Japanese abstracts I will definitely struggle with!!!

    Thanks,

    Gavin

    in reply to: Mom is about to begin Gemcitabine and Cisplatin… #98089
    gavin
    Moderator

    Hi Janice,

    Hopefully those who either they or their loved ones will chip in soon to share their experiences of Gem Cis and what it all involved etc. I know that a ton of people, again either themselves of their loved ones have gone through that treatment and there are loads of posts here on the site detailing it all etc. These can be found here –

    https://cholangiocarcinoma.org/db/search/gemcitabine+cisplatin/

    That link above will take you to the individual postings by members here on the site regarding everything to do with Gem Cis. Hopefully you will get a load of info through that just now and here are some links for you about Gem Cis from the best and most reputable sites here in the UK.

    https://www.macmillan.org.uk/information-and-support/treating/chemotherapy/drugs-and-combination-regimens/combination-chemotherapy/gemcitabine-and-cisplatin-gemcis.html

    https://www.cancerresearchuk.org/about-cancer/cancer-in-general/treatment/cancer-drugs/drugs/gc-gemcis

    https://www.macmillan.org.uk/information-and-support/treating/chemotherapy/drugs-and-combination-regimens/combination-chemotherapy/gemcitabine-and-cisplatin-gemcis.html

    The above links have lots of other links within them that contain a lot more info on it too. I will keep my fingers crossed for your mum and wish her every success with the treatment. Please let us know how it all goes for her.

    My best to you and your mum,

    Gavin

    gavin
    Moderator

    Hi Janice,

    Glad to be of help if I can. Yes, the issue of accessing the full piece rather than just the abstract and having to pay the cost of it is one that crops up a lot unfortunately. Usually you can look around on google to see if there is another link which I did for you but couldn’t find one. You could try searching through this link though Janice and see if that throws anything up for you.

    https://scholar.google.co.uk/scholar?q=%5BTreatment+Outcomes+of+Gemcitabine+and+Cisplatin+Combination+Therapy+for+Unresectable+and+Recurrent+Biliary+Tract+Cancer%5D.&hl=en&as_sdt=0&as_vis=1&oi=scholart

    Hopefully something will come up there.

    My best to you,

    Gavin

    in reply to: Live Broadcast on Wednesday Patient / Caregiver Sessions #98076
    gavin
    Moderator

    Hi all,

    Just a reminder that this event takes places today, starting now at 12pm EST!!!

    The live stream is here –

    Live Stream

    Thanks all,

    Gavin

    gavin
    Moderator

    Thanks for that Billy, much appreciated!

    Gavin

    in reply to: Happy Holidays #97936
    gavin
    Moderator

    Thanks for that Mary. And I would also like to wish you and everyone else here and their families as well a Merry Christmas. I hope that you will all have a good one and that Santa of course is good to you as well!

    Hugs to all,

    Gavin

    in reply to: 9 Years next week! #97825
    gavin
    Moderator

    Hi Randi,

    It is great to hear from you as always and what brilliant news you have to share with everyone, superb!! No doubt Thanksgiving will always bring back these memories for you and I hope that you had a good day yesterday. You are most certainly a beacon of hope for so many people here and please do not feel guilty although I can understand why you could feel that way sometime. You also helped a lot of people here on the boards for all the time that you were a mod here too so thanks as always for all of your work here.

    It is always great to see you back on here Randi and here’s to the next 9 years and more!

    Celebratory Hug for you!

    Gavin

    in reply to: Happy Thanksgiving! #97824
    gavin
    Moderator

    Hi Randi,

    Hope you had a good day! And for sure, if you are coming to Scotland next year or the year after then definitely look me up! Would be great to meet you. You know how to get in touch with me and let me know if I can help with your trip, info etc. Avoid the winter though I would say as it gets a bit chilly here then!

    Gavin

    in reply to: Happy Thanksgiving! #97819
    gavin
    Moderator

    A Happy Thanksgiving to all of my American friends from me over here in Scotland as well. I hope that you all can enjoy the day with your family and friends, and enjoy the turkey too!

    Gavin

    gavin
    Moderator

    Hi Kgroft,

    Glad to be of help as always. Thanks for letting us know about your husband and I am very happy to hear how he is getting on with this. I will keep my fingers crossed for him for further great responses to the treatment and please if you can keep letting us know how things go with this. We are here for you.

    My best wishes to you both,

    Gavin

    in reply to: Unfortunately, another introduction. #97802
    gavin
    Moderator

    Hi Jonathan,

    Welcome to the site although I so wish that you did not have to be here. Thanks for sharing what has and is happening right now and I am sorry that you are having to go through all of this. If we can help at all then we will so please feel free to post away as much as you want and ask questions. And if we have answers to your questions then we will help as best as we can.

    Not much I can add to what the others have said but I just wanted to welcome you here. Yes you are right in that so much of what is on the web in general is full of doom and gloom, but there is also so much garbage out there regarding this and most cancers. My advice to you regarding the web is to ignore so much of it and if you are looking for info etc then please use reputable sites. And of course the support that you will get on here from those who know what you are going through and dealing with is second to none!

    Looking forward to hearing more from you and my best wishes to you and your family,

    Gavin

    in reply to: Anyone have a way to access full studies referenced here? #97768
    gavin
    Moderator

    Hi Taxman,

    Just to add to what Mary said to you about using google or other search engines. What you could do is copy the entire abstract title word for word then paste that into google and that way you will have a much better chance of finding a link to the full piece that you are interested in.

    Eg –

    “Treatment outcomes for unresectable intrahepatic¬†cholangiocarcinoma: Nationwide, population-based, cohort study based on propensity score matching with the Mahalanobis metric.”

    That comes from the abstract you link in in your post and having put that into google it does seem to show another way to view the full piece.

    Hope some of that is useful and good luck with your googling.

    Gavin

    gavin
    Moderator

    Hi Mary and Tilly,

    Thanks loads for posting the extra links and info. Much appreciated as always!! And yes Mary, there is always something new to learn isn’t there! It seems like we are getting some good results lately from research etc, let’s hope that it keeps getting better!

    Thanks loads,

    Gavin

    in reply to: Hello -Husband diagnosed with Cholangia Carcenoma #97681
    gavin
    Moderator

    Dear Kate,

    I am so very sorry indeed to hear of the passing of your husband Ian. Please accept my sincerest condolences. I wish that there was something that I could say that would help ease the pain that you feel right now but I know that there are no words that will help. You did everything that you could to help him through this and I am glad that his last moments were spend at home with his family around him.

    Thank you as well for your most generous offer of donations to the Foundation instead of friends and family flowers, thank you very much. Please know that we are all here for you and my thoughts right now are with you and your family.

    Hugs,

    Gavin

Viewing 15 posts - 46 through 60 (of 6,105 total)
©2019 - All Rights Reserved, Cholangiocarcinoma Foundation