gavin

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  • in reply to: Knowledge is Power – Please have a Read. #98139
    gavin
    Moderator

    In addition to the above piece for those who may not know –

    https://cholangiocarcinoma.org/the-cholangiocarcinoma-foundation/history/

    Thank you all so much!

    Gavin

    in reply to: Frank Fighting CC #98127
    gavin
    Moderator

    Hi Frank,

    Welcome to the site! And yep, Mary is right in that you are posting on the correct page for introductions and all that. But to be honest, you can post where you like really and feel comfortable doing so please do not worry about that at all. And, if you post something that you thought was in the wrong section for the topic then no problems as I can move it for you to another section. Looking forward to hearing more from you Frank.

    My best wishes to you,

    Gavin

    in reply to: vomits #98111
    gavin
    Moderator

    Glad to be of help Johanna and I do hope you can get some help here that works for your husband.

    My best to you both,

    Gavin

    in reply to: vomits #98106
    gavin
    Moderator

    Hi Johanna,

    Welcome to the site. I too am sorry to hear what you and your husband are having to deal with right now and my dad had a lot of nausea issues as well as his CC progressed. In addition to the links that Mary has given you re nausea treatments I also have this one from the UK too –

    https://www.cancerresearchuk.org/about-cancer/coping/physically/sickness

    In may dads case, he went through a wide variety or anti-nausea meds and different combinations of meds to try and get some help with this with varying levels of success and failure. One of the problems that he was facing that with the vomiting , he was bring the oral meds back up before they had a chance to work for him. He eventually got put on a med for the nausea that he left to dissolve under his tongue and that worked a lot better for him. I forget what the actual name of it was but maybe you could speak with your husbands Onc or med team to see about that type of med?

    I do hope that you can get some help here and with the cachexia as well. Please let us know how things go.

    My best to you and your husband,

    Gavin

    in reply to: Hello from Massachusetts #98105
    gavin
    Moderator

    Hi Janice,

    Feeling overwhelmed with all of this is so normal, we as carers have all been there where you are right now. I was my dads carer for 18 months as he fought CC and was my mums carer for 12 years. She had COPD and passed away in Nov last year so I so know what you feel about feeling overwhelmed. Something or rather someone who may be able to help you deal with this feeling is Dr Giles and submitting a question to him. He has helped a lot of the members here and their families deal with the psychological aspects of all things CC related, caring, dealing with emotions etc and he may be of use to you just now.

    Something maybe for you to think about perhaps? If so, he can be contacted through the “Ask a Question” link that can be found on this link here –

    https://cholangiocarcinoma.org/for-patients/ask-dr-giles/

    Mary’s suggestion of a CC mentor for you is excellent one as well, and of course, you have all of us for support too so please keep on coming back here and we will help if we can.

    My best to you and your mum,

    Gavin

    in reply to: Mom is about to begin Gemcitabine and Cisplatin… #98104
    gavin
    Moderator

    You’re most welcome Janice. Just hope that some of that info is of use to you! Let me know if I can help any more and I sure will if I can. However, translating Japanese abstracts I will definitely struggle with!!!

    Thanks,

    Gavin

    in reply to: Mom is about to begin Gemcitabine and Cisplatin… #98089
    gavin
    Moderator

    Hi Janice,

    Hopefully those who either they or their loved ones will chip in soon to share their experiences of Gem Cis and what it all involved etc. I know that a ton of people, again either themselves of their loved ones have gone through that treatment and there are loads of posts here on the site detailing it all etc. These can be found here –

    https://cholangiocarcinoma.org/db/search/gemcitabine+cisplatin/

    That link above will take you to the individual postings by members here on the site regarding everything to do with Gem Cis. Hopefully you will get a load of info through that just now and here are some links for you about Gem Cis from the best and most reputable sites here in the UK.

    https://www.macmillan.org.uk/information-and-support/treating/chemotherapy/drugs-and-combination-regimens/combination-chemotherapy/gemcitabine-and-cisplatin-gemcis.html

    https://www.cancerresearchuk.org/about-cancer/cancer-in-general/treatment/cancer-drugs/drugs/gc-gemcis

    https://www.macmillan.org.uk/information-and-support/treating/chemotherapy/drugs-and-combination-regimens/combination-chemotherapy/gemcitabine-and-cisplatin-gemcis.html

    The above links have lots of other links within them that contain a lot more info on it too. I will keep my fingers crossed for your mum and wish her every success with the treatment. Please let us know how it all goes for her.

    My best to you and your mum,

    Gavin

    gavin
    Moderator

    Hi Janice,

    Glad to be of help if I can. Yes, the issue of accessing the full piece rather than just the abstract and having to pay the cost of it is one that crops up a lot unfortunately. Usually you can look around on google to see if there is another link which I did for you but couldn’t find one. You could try searching through this link though Janice and see if that throws anything up for you.

    https://scholar.google.co.uk/scholar?q=%5BTreatment+Outcomes+of+Gemcitabine+and+Cisplatin+Combination+Therapy+for+Unresectable+and+Recurrent+Biliary+Tract+Cancer%5D.&hl=en&as_sdt=0&as_vis=1&oi=scholart

    Hopefully something will come up there.

    My best to you,

    Gavin

    in reply to: Live Broadcast on Wednesday Patient / Caregiver Sessions #98076
    gavin
    Moderator

    Hi all,

    Just a reminder that this event takes places today, starting now at 12pm EST!!!

    The live stream is here –

    Live Stream

    Thanks all,

    Gavin

    gavin
    Moderator

    Thanks for that Billy, much appreciated!

    Gavin

    in reply to: Happy Holidays #97936
    gavin
    Moderator

    Thanks for that Mary. And I would also like to wish you and everyone else here and their families as well a Merry Christmas. I hope that you will all have a good one and that Santa of course is good to you as well!

    Hugs to all,

    Gavin

    in reply to: 9 Years next week! #97825
    gavin
    Moderator

    Hi Randi,

    It is great to hear from you as always and what brilliant news you have to share with everyone, superb!! No doubt Thanksgiving will always bring back these memories for you and I hope that you had a good day yesterday. You are most certainly a beacon of hope for so many people here and please do not feel guilty although I can understand why you could feel that way sometime. You also helped a lot of people here on the boards for all the time that you were a mod here too so thanks as always for all of your work here.

    It is always great to see you back on here Randi and here’s to the next 9 years and more!

    Celebratory Hug for you!

    Gavin

    in reply to: Happy Thanksgiving! #97824
    gavin
    Moderator

    Hi Randi,

    Hope you had a good day! And for sure, if you are coming to Scotland next year or the year after then definitely look me up! Would be great to meet you. You know how to get in touch with me and let me know if I can help with your trip, info etc. Avoid the winter though I would say as it gets a bit chilly here then!

    Gavin

    in reply to: Happy Thanksgiving! #97819
    gavin
    Moderator

    A Happy Thanksgiving to all of my American friends from me over here in Scotland as well. I hope that you all can enjoy the day with your family and friends, and enjoy the turkey too!

    Gavin

    gavin
    Moderator

    Hi Kgroft,

    Glad to be of help as always. Thanks for letting us know about your husband and I am very happy to hear how he is getting on with this. I will keep my fingers crossed for him for further great responses to the treatment and please if you can keep letting us know how things go with this. We are here for you.

    My best wishes to you both,

    Gavin

Viewing 15 posts - 46 through 60 (of 6,109 total)
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