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Thanks for your kind words, support and for sharing your story with me. Am so sorry to hear about your dad and what you both went through. I’m glad that you shared these good talks together and I’m sure that they meant a lot to your dad as well.
I can fully relate to what you and your dad must have gone through with the itching having seen what my dad went through. He would sit there for hours on end itching and scratching away and it got to the point where he was finding it hard to sleep because of this. The worst part for him was the itching around his eyes and he was constantly taking off his glasses and rubbing his eyes. What was of a great worry to us at this point was that we did not know why he felt like this.
Thats pretty bad that your doc didn’t understand about your dad’s itching. When my dad went to see his GP about this, he hadn’t been diagnosed with actual CC, but was very jaundiced and waiting to go to the hospital. The GP prescribed Piriton which helped a bit, but did not stop the itching. In the hospital, my dad still took the Piriton and still had the itching. It was explained to him that the itch was a result of the jaundice and that the stent when it went in should help. Once the stent was in, my dad also had a billary drain draining the bile duct of blocked fluid into a bag that was attatched to him 24/7. The doc at the hospital described this as a “2 pronged attack”. My dad’s response was along the lines of attack it anyway you want!! After more than a few weeks of itching, he would have tried anything to get it to stop! Clearing the bile duct of the blockage was also necessary before the PDT treatment could be started and the docs wanted to get on with the treatment ASAP, as did my dad.
Peace be to you and your family and my thoughts are with you also.
I’m glad the info regarding PDT was helpful to you, hopefully the treatment will be helpful to my Dad! If there is anything specific you or anyone else wants to ask regarding my Dad’s treatment then ask away, I am more than happy to help if I can.
When Dad puts on the hat, gloves and glasses, he may think that he is Michael Jackson, however, he most definitely does not have the same moves! It was very funny to see him all dressed up like that shuffling his feet thinking he was cool! Certainly the nurses and us all had a great laugh as well and a few of them took some photos of him! Although he may have felt like a star, he can not however move like one! My Dad has a great sense of humour and took all of this very well. It’s great for us to see that no matter what is wrong with his body, he hasn’t lost his sense of humour.
Prayers of support to you coming back across the waves from this side of the pond.
All the best
Thank you very much for your kind comments. God be to you and your family also. I will keep in touch with you all. Hugs back across the ocean to you. I wish you all well.
Many many thanks to you all for the very warm welcome you have extended me. And thank you all so very much for the prayers to my family. I am very happy to have found this site and all of you.
Lainy, you are right, I do need you all and I hope that I can give you all back as much as you are all giving me.
Marions, I do not know who Ron Smith, but it is always good to see another Scotsman! Funnily enough, my Dads name is Ron, but the nurses in the hospital kept calling him Ronald, which seemed weird to me and my Mum!
Kel, thanks for your welcome.I hope this site is as much of a help to me as it has been to you.
Thank you all so very much once again, all of you will be in my prayers and I look forward to being side by side with you all
Love to you all
Hi Lainy and all,
My name is Gavin and my father was recently dignosed with CC. I sent you a letter to the email link under your name talking about my fathers story. I only registered with this excellent site yesterday, so I don’t know if my letter will be okay for you to use. Having only just joined the site, I didn’t know if it would be ok for me to write to you as a carer and a son regarding my fathers story, or if you only wanted letters from people suffering from CC. Anyway, I sent you the letter. Hopefully you will find it useful.
I will do an intro type post to all on myself over the next few days.
Love to all