gavin

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Viewing 15 posts - 61 through 75 (of 6,108 total)
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  • in reply to: Anyone have a way to access full studies referenced here? #97768
    gavin
    Moderator

    Hi Taxman,

    Just to add to what Mary said to you about using google or other search engines. What you could do is copy the entire abstract title word for word then paste that into google and that way you will have a much better chance of finding a link to the full piece that you are interested in.

    Eg –

    “Treatment outcomes for unresectable intrahepatic¬†cholangiocarcinoma: Nationwide, population-based, cohort study based on propensity score matching with the Mahalanobis metric.”

    That comes from the abstract you link in in your post and having put that into google it does seem to show another way to view the full piece.

    Hope some of that is useful and good luck with your googling.

    Gavin

    gavin
    Moderator

    Hi Mary and Tilly,

    Thanks loads for posting the extra links and info. Much appreciated as always!! And yes Mary, there is always something new to learn isn’t there! It seems like we are getting some good results lately from research etc, let’s hope that it keeps getting better!

    Thanks loads,

    Gavin

    in reply to: Hello -Husband diagnosed with Cholangia Carcenoma #97681
    gavin
    Moderator

    Dear Kate,

    I am so very sorry indeed to hear of the passing of your husband Ian. Please accept my sincerest condolences. I wish that there was something that I could say that would help ease the pain that you feel right now but I know that there are no words that will help. You did everything that you could to help him through this and I am glad that his last moments were spend at home with his family around him.

    Thank you as well for your most generous offer of donations to the Foundation instead of friends and family flowers, thank you very much. Please know that we are all here for you and my thoughts right now are with you and your family.

    Hugs,

    Gavin

    in reply to: Feeding tube supplies and formula donation #97645
    gavin
    Moderator

    Dear Arlyn,

    I am so very sorry indeed to hear of the passing of your dear father. Please accept my sincere condolences. Having also lost my dad to this cancer I so know the pain and loss that you feel right now and wish that there was something that I could say that would help right now. Like Mary, I too hope that someone will take you up on your most generous offer of donation of these items and I thank you for this as well. Please know that we are all here for you and my thoughts are with you and your family right now.

    Gavin

    gavin
    Moderator

    Thanks as always for the extra info Mary! Appreciated loads by everyone.

    Gavin

    gavin
    Moderator

    Just a heads up again for the upcoming webinar so thought I’d bring this to the top of the page again!

    https://register.gotowebinar.com/register/5536959531344797443

    This webinar will give updates on the TAS 120 clinical trial and also be a question and answer forum for patients and caregivers. If you have a question you’d like answered, please submit it at bit.ly/tas120webinar

    Thanks!

    Gavin

    in reply to: Ivosidenib: First Global Approval. #97504
    gavin
    Moderator

    Hi Mary,

    Glad to be of help as always! Thanks to you for the extra info as well re the AG-120 and some of our members taking part in that trial. I did a search for AG-120 on the boards so that that info is in this post and this is what came up –

    https://cholangiocarcinoma.org/db/search/AG-120/

    Thanks as always Mary!

    Gavin

    gavin
    Moderator

    Thanks for that Tilly, I will pass that idea on!

    Gavin

    gavin
    Moderator
    gavin
    Moderator

    Hi Billy,

    As I understand it there may be funds available to purchase certain full pieces but please do not quote me on that one! And even if we were able to purchase a report I am not sure if we would be able to put the full link here on the site for all to read as many of the publishers do not want their research pieces out there for all to read. But I will look into this some more.

    As Mary has said though google will be your friend here! I did this search here –

    https://www.google.co.uk/search?q=AJCC+intrahepatic+cholangiocarcinoma+8th&rlz=1C1ASUM_enGB770GB770&oq=AJCC+intrahepatic+cholangiocarcinoma+8th&aqs=chrome..69i57j69i60j69i61j0l2.886j0j7&sourceid=chrome&ie=UTF-8

    Maybe you will find much more info on this issue with reports that come up in this search that I am unable to link to here on the site for copyright reasons. If you find a piece though that is available for purchase then please send me the link then I will see if there is anything that we can do with it with regard to purchasing it etc. Hopefully you will find more info through the above google link.

    Thanks,

    Gavin

    in reply to: Walking The Road #97454
    gavin
    Moderator

    Hi Tilly,

    I too am sorry to hear this latest news from you about Peter and know that this is not at all what you wanted to hear. But I too hope that they have caught this early now as we all know that the earlier things are caught the better for many reasons. I know that it will be hard for you both to get back into the routine etc of treatments and all that that brings with it as well. But I am hoping that once this latest news and setback has been taken in that you will both get the boxing gloves on again and come out swinging. Thinking of you both right now and keeping my fingers crossed for the best possible outcomes with the Gem/Cis and other treatments that may follow. Please keep us updated on how things go.

    Hugs,

    Gavin

    in reply to: TAS-120 #97441
    gavin
    Moderator

    Dear Kim,

    I am so very sorry indeed to hear of the passing of Rich. Please accept my sincerest condolences. You both did everything that you possibly could to help Rich fight his cancer. I wish that there was something that I could say that would help ease the pain that you feel right now. Please know that we are all here for you and my thoughts are with you and your family right now.

    Hugs,

    Gavin

    gavin
    Moderator

    Thanks for posting that cholangotango.

    Gavin

    in reply to: Our New Discussion Board is HERE #97422
    gavin
    Moderator

    Dear Shortcanuck,

    I too am sorry to hear the news of the passing of your husband. Please accept my deepest condolences. We do have Dr Giles here on the site who may be able to help you with coping right now. He can be found here on this page –

    https://cholangiocarcinoma.org/for-patients/ask-dr-giles/

    Please do not worry about posting on the right or wrong page. We also have a board here that may also be of help to you right now as well –

    Grief Management

    My thoughts are with you and your family right now.

    Gavin

    in reply to: TAS-120 #97421
    gavin
    Moderator

    Hi Kim,

    Glad to hear that you were able to get Rich home now and sorry to hear though of the initial issues with hospice care. Hopefully this is just a one off. What great care though from the pharmacist! As you say, one of the perks I guess of living in a smaller town. Here is a link on ascites for you that has a lot of info in it and I hope that it is of use to you.

    https://www.macmillan.org.uk/information-and-support/coping/side-effects-and-symptoms/other-side-effects/ascites.html#46184

    https://www.cancerresearchuk.org/about-cancer/coping/physically/fluid-abdomen-ascites/treating

    You should def ask the doc about the fluid coming back quicker if you keep draining each day but my understanding is that it can come back quicker the more that it is drained. I am not an expert on this at all but my dad had it done a few times and after each time he felt a lot more comfortable once the draining was done. Speak to the doc about this Kim.

    My best to you and Rich,

    Gavin

Viewing 15 posts - 61 through 75 (of 6,108 total)
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