gavin
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June 15, 2019 at 8:40 am in reply to: Entinostat in combination with nivolumab for patients with advanced cholangiocar #98753gavinModerator
Hi Kgroft,
Thanks for letting us all know about this trial and that your husband is on it. I will of course keep my fingers crossed for him and for the best possible outcome for him as well. I assume that his onc is aware of the side effects that your husband is experiencing right now and hopefully he will be able to cope with them.
Thanks loads as well for offering to keep us all updated on his progress, thats great. But please do not feel any pressure or anything to post and stuff as you will have a lot to deal with with all of this.
My best wishes to you both,
Gavin
May 19, 2019 at 6:14 am in reply to: Addition of Abraxane to Standard of Care May Prolong Survival for Advanced Bilia #98645gavinModeratorHi Mary,
Thanks for the clarification on how things stand with you post surgery. And I too am very grateful that you are NED after these 42 months, fingers are crossed for you here for the next 42 months and more to continue with NED! Yes the amount and type of the abstracts that are coming out here each year at Asco and other conferences throughout the year is very encouraging and I do feel progress is being made. I see a lot more stuff in general, read about things and hear a lot more in general that is positive for progress and I believe as always that we will get there in the end!
My best to you as always Mary and hope you are having a great weekend!
Gavin
May 16, 2019 at 1:09 pm in reply to: Addition of Abraxane to Standard of Care May Prolong Survival for Advanced Bilia #98634gavinModeratorThanks for that Mary. And thanks as well for sharing what you did with the results of the abraxane and showing it to your onc. I hope that that will be an option for you and thanks loads for sharing it with everyone. I always say to people that if they see something in the material and studies that I link to here then to print it out and show it to your onc to see what they say. Just as you did!
Yep, like me and most of us I guess we all find a lot of the medical literature tough to understand so people could just jump to the conclusions to get the highlights of the piece. Usually the conclusions are a lot easier to understand for us all.
I think that there were 89 or so abstracts that came out last night from the upcoming ASCO annual meeting for this year and that seems to be more then last year. Actually, it seems to be increasing every year which I would say is a good thing. The more research we get the better!
I put most of them on here like every year but some didn’t seem to be related to CC too much. And I like to put them on the site individually so that if people are searching for say XYZ then it will show up in the search forum function rather than just put a link up to the whole list of them in one go.
But here is the link anyway to all of them if anyone wants to go through them all –
http://abstracts.asco.org/239S/search.php?zoom_query=cholangiocarcinoma&op.x=32&op.y=16
There are a lot of them! Most of the better CC ones are on the first 6 pages or so.
Thanks Mary!
Gavin
April 26, 2019 at 6:27 am in reply to: Gemcitabine, Cisplatin, and nab-Paclitaxel for the Treatment of Advanced Biliary #98513gavinModeratorHi Mary,
Thanks for that and I am glad to be of help as always. And yes, I so agree with everything that you say on the trial and results etc. Let’s keep fingers crossed that the data from phase 3 is good as well! Your point as well about chemo leading to possible surgery for those previously deemed inoperable is so important too and this would have been good for my dad had he been able to go down that road. Much has changed since he was diagnosed in 2008 and that is good, but there is still so much more to do yet as I am sure you would agree. We will get there though!
Thanks loads Mary!
Gavin
P.S One thing that I would add about research and stuff is that compared to what I used to find when I started looking for it all and posting links about it back in 2008 and compare that to what I come across now, there has been a huge increase in pieces, news, data and studies etc now compared to back then. The progression has been gradual but seems to be getting quicker now from what I find online and read about. But we still want more and better don’t we!
gavinModeratorHi kgroft.
Sorry to hear about the progression for your husband after being on the previous trial. Please do not give up hope though. Is this the new trial that John’s Hopkins has recommended that your husband start?
https://clinicaltrials.gov/ct2/show/NCT03250273
Thought I would put an actual link to this on the boards in case that it is. Have you used the search forum function on the boards to search for postings on the new trial here?
My best to you and your husband.
Gavin
gavinModeratorHi all,
Just a quick reminder that this is happening today and you still have time to attend if you want to. Just use the link in the post above to join in with it online.
Thanks all,
Gavin
April 24, 2019 at 3:37 am in reply to: Gemcitabine, Cisplatin, and nab-Paclitaxel for the Treatment of Advanced Biliary #98494gavinModeratorApril 24, 2019 at 3:37 am in reply to: Gemcitabine, Cisplatin, and nab-Paclitaxel for the Treatment of Advanced Biliary #98493gavinModeratorgavinModeratorHi Brigitte,
I had a quick google and came up with this from the MSKCC database –
https://www.mskcc.org/cancer-care/integrative-medicine/herbs/wheat-germ-extract
Found this as well although it is quite old research –
https://www.ncbi.nlm.nih.gov/pubmed/20155632
Hope some of that is useful.
My best to you,
Gavin
April 23, 2019 at 9:01 am in reply to: Gemcitabine, Cisplatin, and nab-Paclitaxel for the Treatment of Advanced Biliary #98486gavinModeratorApril 20, 2019 at 9:14 am in reply to: Gemcitabine, Cisplatin, and nab-Paclitaxel for the Treatment of Advanced Biliary #98477gavinModeratorPhase 3 now recruiting.
Gavin
April 20, 2019 at 9:13 am in reply to: Gemcitabine, Cisplatin, and nab-Paclitaxel for the Treatment of Advanced Biliary #98476gavinModeratorPhase 3 now recruiting.
Gavin
April 19, 2019 at 10:46 am in reply to: Gemcitabine, Cisplatin, and nab-Paclitaxel for the Treatment of Advanced Biliary #98475April 19, 2019 at 10:45 am in reply to: Gemcitabine, Cisplatin, and nab-Paclitaxel for the Treatment of Advanced Biliary #98474April 19, 2019 at 3:59 am in reply to: Gemcitabine, Cisplatin, and nab-Paclitaxel for the Treatment of Advanced Biliary #98472 -
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