gavin

A google search throws this up for you W.

https://www.google.com/search?q=yeliva+cholangiocarcinoma&rlz=1C1ASUM_enGB770GB770&oq=yeliva+cholangiocarcinoma&aqs=chrome..69i57j69i60l2.5791j0j7&sourceid=chrome&ie=UTF-8

Gavin

Hi there,

Hopefully someone will have experiences etc to share with you about this trial, although I have none. This is the trial here is it not?

https://clinicaltrials.gov/ct2/show/NCT02821754

Thought I would put a link to it on the boards as it may help people recognise it.

I did a search of the boards for the drugs used in the trial as thought that may be of help to you and came up with these links –

Tremelimumab –

https://cholangiocarcinoma.org/db/search/Tremelimumab/

Durvalumab –

https://cholangiocarcinoma.org/db/search/Durvalumab/

Hope some of that is of use and I keep my fingers crossed for your husband for the best possible outcome to the trial.

My best to you both,

Gavin

Hi Laura,

Welcome to the site. Sorry that you had to find us all here and sorry to hear what your Dad is going through now. But I am glad that you have joined us all here as you are in the best place for support and help  and I know you will get a load of both from all of us here. Thanks as well for letting us know what you and your dad are dealing with here. I know how you feel as I felt the same when my dad was diagnosed back in 2008 and I came here too feeling like you do now. I’d never heard of CC until we got the news that my dad had it and I am guessing that that was the case for you as well.

You are doing the right thing in learning as much as you can about all of this as the better informed you are the better placed you will be to help your dad to deal with everything about this disease, treatment options included. There is a ton of info here on the site so please use that and do not be afriad to ask questions, there are no silly questions at all!

I hope that the insurance comes through very quickly and that you can get that app at MD Anderson and you will be in good hands there. Please just make sure that all of your dads med team are highly experienced in dealing with CC and patients with CC. Many are not that experienced and you want to be with those who do have lots of relevant experience to say the least! Keep coming back here Laura and let us know how everything goes.

My best to you and your Dad,

Gavin

Hi Hannah,

Welcome to the site and thanks loads for “delurking” now! Thanks for sharing what is going on with everything for your mum. I am sorry that you had to find us all here but glad that you have joined in and posted now as I know that you will get a ton of help and support from everyone here, Glad as well to hear that when you were lurking that you still got a lot from the boards in terms of support and help too. That is good to know. So to all the other lurkers out there, please come and join us, say hi and know that we don’t bite!!

Thanks for sharing everything that is going on right now and from what you say your mum is going through a lot with everything. You are so doing the right thing in seeking to learn as much as you can about everything CC related as the better informed you are about it all the better you will be able to help your mum. And yes, you are well on the way to your 2nd PHD now! Keep coming back Hannah and let us know how everything goes. You’re not alone in this now.

My best to you and your mum,

Gavin

Hi Brigitte,

Thanks for letting us know how things are going and good to hear that the Gemzar is keeping things from spreading. I hope that all goes well with the app with the rad onc and that things can get going with that quickly. I hope too of course that it works very well indeed and I will keep my fingers crossed for the best possible outcome with everything.

My best wishes to you,

Gavin