genevieve

Hello currakid,

I’m new too and am also in Australia. Very nervous about posting. My husband is in hospital at present, having had his second resection for intrahepatic cholangiocarcinoma a few days ago. We’ve come to Sydney for this operation because his first surgeon is away at present.

I have no medical knowledge and you may be happy with your specialist, but just wanted to say that perhaps you might look for a specialist who is involved with one of the big liver units here as they would be presumably be most likely to have experience with recommendations for therapy. There are liver units at RPA in Sydney and Princess Alexandra in Brisbane; I would think there are others as well but haven’t looked into it. I’ve seen research publications on CC by people from a number of other Australian hospitals though, for example the Austin in Melbourne has a clinical trial going; people from St George in Sydney published on surgical outcomes a couple of years ago; Sir Charles Gairdner in Perth recently published on chemoradiotherapy outcomes.

Best wishes,

Genevieve