goodheartedmommy
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betzeegirl wrote:My husband (the one with CC) and I are professional jazz musicians, and we could provide music for CC fundraising events on the east coast (we live in NJ)–just a thought!!!
How wonderful!
As i said above, i will be helping people plan events for ccf. Can you contact me so i can have your info for a resource for those in the area? That would be wonderful.
You will be seeing more of me regarding fundraisers
Talked to stacie today and i am thrilled to be volunteering for ccf helping others plan fundraisers. The wheels in my head are already turning…fast!
You can shoot me an email if you would like and i can send you my phone number so we can chat if you would like. I would absolutely love to see more events around the country.
It was quite a bit of work but so worth it. I had a lot of volunteers, several of whom secured sponsor money and prizes. On top of that, we had about 70 volunteers (more than we needed, but it was still wonderful). We did a 5k walk/run and 1 mile walk. There was no entry fee; donations only, but i think we made more money that way.
i had to figure a lot of it out on my own and with the help of google. I am excited to use what i learned to help others plan these events. We can’t find a cure without raising money and awareness!
Let me know how you would like to talk so i can help.
I think it would be awesome to use “to cure cholangiocarcinoma” as our slogan and use the memorial name and event in front (like the tim hargis race to cure cholangiocarcinoma, sue smith cycle to cure cholangiicarcinoma, etc)
Grover, good to hear things are looking up now. I think of you often, as i remember you were just starting to run before your diagnosis. I hope you have more running in your future
If anyone else wants to come to lexington, ky on june 9 for our fundraiser, they can meet me and tiffany
Tiff, i am so excited to meet you. I would love to take you guys out to dinner. Dad will be excited, too. We have told him all about a lot of you. He loves the gaither gospel band so mom told him you were going tha night. He was jealous!
Thanks everyone for the encouragement, love, and advice
Marion, i don’t know things would have been the same a few years ago. I went through a lot emotionally the last few years, and i think i was preparing for this.
I hope the chemo is able to help with the pain. He is meeting with the surgeon to consult about the hernias. I will keep you guys updates.
University of ky. The doctor wss brought here to start the program here. He had worked for a long time with the other type of beads, but prefers these.
Dad had a heavy dose on one lobe (the one with the large tumor). Today he had about half that on the other lobe. I just asked him and he said he felt nothing…no pain, no pressure, nothing. He is under conscious sedation and talks during it to the doctor.
His fatigue was the worst side effect. Honestly, we aren’t quite sure beyond fatigue what was causing the other side effects (nausea a.d loss of appetite) because hewas dealing with kidney stones, too. The stones are gone so we will see how this time goes. I will update in a week.
Take care and lauren is in our prayers.
Pam, dad is getting his second treatment today. He said yesterday he feels better than he has since he started cisplatin. He was extremely fatigued, especially for the first week. He could stay awake long enough to move to another room. He was thin to start with, and lost at least 18 lbs. I would encourage Lauren to try to put on a little weight before starting. Let me know whatever specific questions you habe and i will check back later.
