gskelly
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Been busy and haven’t kept you up with events. Wife had mapping and then 1st treatment of SIRT three weeks ago. Held her over as high heart rate and low blood pressure, which is not uncommon for her. The pain has increased ever since and today had 3 liters of fluid taken off her mid section in hopes of alleviating some of the pain. She looks pregnant with swollen ankles and feet, although has lost 20 pounds to 110. They have put off the next treatment for two weeks hoping she will regain strength. She is very weak and can barely get out of bed. Thinking of taking her to Barnes in St. Louis shortly. Multi Disciplinary Team seems dysfunctional as not much information being dispersed.
Just read the post from Jason Scott, which quoted Dr. Greg Gores of the Mayo Clinic at last weeks ASCO GI – Practice Guidelines for Intrahepatic CCA
Conference in San Francisco. “There was an interesting discussion on TransArterial ChemoEmbolization (TACE) and TransArterial RadioEmbolization (TARE). He suggested these as FIRST LINE treatment when resection is not possible for ICC.” He felt gene sequencing results for ICC, which divided ICC into “Proliferation class vs Inflammation class” was helpful as the types of mutations associated with each type were different. He thought this would be important for treatment soon.Made me somewhat relieved plus the fact that our radiologist attended. I guess the target is always moving, however. But the St. Louis connection will be used at the appropriate time.
Wow, amazed at rapid response and questions.
She is a young and active 63 and had been in good health other than poor circulation in the legs, “PAD”, treated with medication. No symptoms other than weight loss, which she attributed to retirement as a CPA meaning less stress and candy. In November she started having pain in right side which she attributed to lifting and moving ‘stuff’ for her mother. No liver problems and all functions seemed fine. I believe they performed a needle biopsy at the Kidney Clinic. Both labs are involved, and doctor plans two sessions a week or so apart. She is reluctant to ask for 2nd opinion at this point.
I think I covered the questions. Thanks
