heatherkp

Hey Jan! Wow! It seems like years ago that we were at Mayo there in Rochester…yet it was just in April. Our Dr. was Dr. Gores…We saw him after three days of VERY INTENSE testing that left Lee a mess…my suggestion to you is wherever you are staying….grab a wheelchair and keep it with you. We stayed right across the street at a hotel I cant remember the name of….I do remember the Caribou Coffee house! The process of going from one place to another seems absolutely overwhelming when you arrive..actually very frightening…but it really is very simple…it all goes off without a hitch it seems….be prepared for lots of waiting and walking….much of the time you will be waiting alone…so of course…a good book….munchies and beverage are a girls best friend….cell service seemed to be pretty good…when you go to the class on liver transplant education…ask ALL the questions you want EVEN IF YOU FEEL LIKE A DORK! The nurse who did our class was incredible…we had to leave the tiny room she held class in because Lee was so ill, but she would stop for a moment and help us whenever we had to get out….we felt very embarrassed, but remember….everyone there is there for the same reason…I broke down when the class started because it all just came to a head….and the wonderful nurse was right there to comfort not only me…but everyone else….it all seemed so surreal….I look back on the entire process and the only way I know we got through it was that God was right there with us every step of the way….it helped too that all of the staff of the hospital were very friendly…Let’s see…I’m trying to think of anything else….I’m sure I’ll think of things as I go….Your husband will be doing alot of fasting….but they will give you an entire schedule for every day and complete details of what to do…right down to what he should wear during testing….OH! We stayed at the Kahler Inn…most places have free transport to and from the hospital if you dont want to use their underground walking system….if you need anything or can think of anything to ask…I’ll check the sight often for you…..until then…please know that we will praying for you that you will have strength, courage and comfort through this difficult time and be sending good thoughts right your way!

Love,
Heather

We go on Fridays have been since May and will continue into next year! They are all phenomenal docs…not to mention truly caring, genuine people…by the way…just click on the email below your name…what a concept…I feel that as of late…I’m beginnin to think like my little kindergartner’s!!!

Charlene, the first thing that came to mind when I read your post was this:

“I can do all things through Christ who stregthens me” Phillipians 4:13

Know that Emilee and I will pray for you and John tonite .

Love,
Heather

Howdy Girlys! Just got some time to sit down and look things over….I have been sooooo busy with life that I haven’t had time to sit down and go over the site…what are we writing and sending letters for? What might they include? And to what e-mail do I send them to? The enthusiasim the two of you have is contagious! I want to be a part of it! I’m tired of sadness and frustration and insurance and chemo and pain and stress and anger and confusion and anxiety and worry and bitterness and well….you all know! Time for some uplift and go get em!

Love,
Heather

Hey Dutch…..Lee was told he was inoperable as well and had 2 months to live. That was almost 3months ago now. He started chemo in May and is in his second cycle with 16 more treatments to go. The doc is estatic with his progress. His numbers are “normal” (like yours or mine without cancer) and he is getting stronger and stronger by the day…he was even out driving and hauling in his super 14 yesterday and went flying this morning with a buddy to have breakfast in the pines….although he gets super tired…he’s returning to his old self….I guess what I want you to know, like Anne…DON’T GIVE UP! Keep faith and trust in God, stay positive and fight, fight, fight!

Heather

Lee and I watched my dad suffer as he began to lose the battle with a very rare form of throat cancer…I, like you loved my dad beyond measure…it is so ironic because now, I am watching Lee go through what my dad did, and I am walking in my mom’s shoes as she cared and loved my dad to the very end…our diagnosis seems to be much more promising as I thank God every day for His blessings and miracles…please know that you are not alone. I can tell you that we will be praying for you, and God is much bigger than this monster attacking our families. “Be still and Know I am God” Psalm 46:10…..

Love,
Heather