highstresslaidback

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  • in reply to: Hypercalcemia #84610

    My dad has now developed a rash on his back within the last 24 hours. Any thoughts about that? He hasn’t started chemo. He’s headed to the doctor to get an infusion for the high calcium levels right now.

    in reply to: Our journey has just began #84539

    Thank each of you for your responses. I apologize for not getting back here sooner. It was a busy week in Houston and then I had to fly back and throw my 3 year old a birthday party! It was good times all around.

    My dad’s time at MD Anderson went good. I’ll be honest, I was a little taken back when we first got there. There are A LOT of sick individuals fighting their battles there. After the shock, we relaxed a little and focused on the appointment and my dad.

    Dr. Javle and his team were absolutely amazing and wonderful and so very caring. Dr. Javle would have sat in the room all day and answered our questions. (at least that is how he made us feel). He confirmed the my dad does indeed have CC. It is stage 4 (I think stage 4a). He was positive for CK 7 and weakly positive for CK 20. Negative for PSA, TTF-1 and CDX -2. I am still learning what all of that means too.

    My dad is only 66 and otherwise pretty healthy. He did not present with any pain. He lost some weight quickly and was tired. Went for a physical and discovered that his calcium levels were elevated. That is how this all started. What a silent enemy!!!

    He starts chemo tomorrow, Gemcitabine and Cisplatin and will repeat every 14 days. We will then go back to MD Anderson for re-staging in 3 months.

    Thank you all again for your responses and support. What an awesome way to learn and connect.

    Alison

    in reply to: Our journey has just began #84532

    Sorry for the double post. Doing this from my phone and it didn’t appear to post and I don’t know how to delete. Lol newbie problems

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