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  • in reply to: My MIL – loved and missed by many #96036
    hopeseeker
    Participant

    Thank you all for your condolences and kindness. My husband was able to spend much needed time with his family over the last few days and it was comforting to tell and hear stories that brought tears and laughter. She was loved by so many and touched hearts and lives all around her.

    Her memorial will be next weekend and our daughters will sing. It will be tough to get through but we know she is no longer hurting so that eases the pain for us some.

    Thank you all for your input, suggestions, advice and for just reading and understanding the pain this awful cancer causes.

    Angela

    in reply to: Now in Hospice #96004
    hopeseeker
    Participant

    Dear Melinda,

    Thank you. It just helps so much to be able to post here and get some love and care from those who have been down this road or are on it now with loved ones. It’s a bit of a helpless feeling to know a loved one it’s declining and my heart breaks.

    Thank you for your prayers also. I hope Friday will bring some good news in the midst of all the trouble. I hope my MIL can regain some of her clarity and sharpness.

    Hopeseeker

    in reply to: Now in Hospice #95999
    hopeseeker
    Participant

    Hospice nurse came out and put a catheter in for my MIK. There’s no infection that the nurse could tell of, but just a complication of the cancer. She is refilling her meds for her too since she’s had to use more lately.

    Hosoice nurse is coming back on Friday to check on her and make sure she’s not in pain or having trouble with the catheter. She’s having pain, but the morphin is keeping it under control.

    I talked to my MIL on the phone and she sounded very groggy and was confused about several things. I know the morphine and breakthrough meds are making her a bit loopy. She forgot what she was going to say several times and didn’t know the nurse had refilled her prescriptions. She also said she forgot to ask the nurse about glasses for her double/blurry visio and getting her teeth fixed (something she has wanted to do but wasn’t able to for so long). It broke my heart to hear her saying she was going to ask about glasses and getting her teeth fixed knowing she doesn’t need glasses. I did not break down in the phone because I didn’t want to worry her or upset her, but my heart is breaking.

    Thank you all for your support and any suggestions or advice you can give. We will be going to love on and be with her again in a few days. I’m glad they are able to get her pain under control, but the effects of the drugs are making it hard to communicate for her and for her to stay awake long.

    Say a prayer for my MIL (her name is Rosemary) and for the rest of the family in these next few days, weeks and hopefully months.

     

    Hopeseeker

    in reply to: Now in Hospice #95996
    hopeseeker
    Participant

    Update:

    It seems my MIL is having some complications cropping up. She’s having a lot of pain and having to take her liquid morphine every 2 hours along with her time release morphine and her breakthrough pain meds.

    Her sister says she’s not been able to urinate in 2 days, she’s having some trouble putting sentences together and she has double vision along with the increased pain.  Could her stents be blocked, is it cancer progession or is the morphine causing this?

    My aunt is going call the Hospice nurse to see what to do. The nurse is set to come out tomorrow which is very good since she will be able to evaluate my MIL better that way.

    Hopeseeker

    • This reply was modified 3 years, 11 months ago by hopeseeker.
    • This reply was modified 3 years, 11 months ago by hopeseeker.
    in reply to: Pain Management: What is working for you? #95994
    hopeseeker
    Participant

    Dear Positivity,

    So far my MIL is on morphine pills (30mg time release) with breakthrough pills of generic oxycodone for in between morphine doses.

    Yesterday she has had to take the liquid morphine (which she can take every 2 hours) that the Hospice nurses have given her. She’s been having more pain and sleeping more these past few days. She’s not on chemo either. The pain is coming from the tumor along with her digestion being so messed up from the cancer and drugs. She had terrible constipation and now it’s switched to the opposite.

    Hope you can find a good pain relief option for your mom. It’s terrible to see our loved ones in pain and hurting. It makes things hard on them too because it’s draining and depressing to have constant pain.

    Hopeseeker

    in reply to: Now in Hospice #95991
    hopeseeker
    Participant

    Dear Mary and Cathrine,

    She is only 60 and just feels she should have more time here with family. She knows where she’s going when she dies and has peace with that, but is just not wanting to leave her son, grandkids and rest of the family. We will be visiting with her again soon and it always seems to cheer her up.

    Cancer is so cruel. I wish there was a cure. She wanted to keep fighting the cancer with chemo, but her body couldn’t handle the chemo anymore.

    Not sure how long she has with us still and no one really does. We just pray for peace and comfort for her as we show her love and let her know it’s ok for her to go when the time is right. We have told her we will miss her of course but we would never want to prolong her days of pain and suffering here for our own selfish needs….this is so hard. I knew these days were coming, but nothing prepares you for the downward spiral a loved one goes through with cancer.

    in reply to: Now in Hospice #95987
    hopeseeker
    Participant

    Hello again everyone,

    We had a good, albeit very emotional visit with my MIL yesterday. She is so very emotional and cries often. She still keeps saying she is not ready to die, and that breaks my heart. We all must face the end of life at some point, but some are just not ready as early as they have to be faced with it. I feel her tears and emotions are very common with patients who are nearing death, but can anyone chime in on this?

    My husband and my MIL had to have some very difficult talks about the end of her life and what her wishes were. That was so hard to witness. The emotions were high, but the love and care were very present too. We loved on her and told her over and over how special and loved she was. This is such a hard and trying time for our family. I know many of you have walked this path before so I feel welcome and supported in sharing this info here.

    Thank you again for your help and kind words. We are praying for many more days and months for my MIL, but we are cherishing each visit and hug we can right now.

    Hopeseeker

    in reply to: Now in Hospice #95984
    hopeseeker
    Participant

    Dear Cathrine,

    Thank you for your input. She is still at home but with home Hospice coming once a week for now. This has helped both my MIL and her sister because of the great care and suggestions they give.

     

     

    in reply to: Now in Hospice #95951
    hopeseeker
    Participant

    Dear Gavin,

    Thank you for your reply and kind words. Knowing that I can ask questions and get support and suggestions is so helpful.

    As much as we hated for this stage to come, it was also a relief due to her being so sick from her chemo regimen. She can actually eat better now. She has a few things she would like to do and chemo is not a hindrance for her now.

    She does have swelling in her feet, ankles and abdomen, but not enough to drain at this point. She is supposed to get some compression socks to help her feet and ankles some, but she said it’s not going to help much because her liver function is declining which is causing the swelling. She is a bit jaundice, but not like she was when she went to the ER back at the end of March. She shuffles when she walks and is tired very easily. She’s not vomiting like she was when she was on chemo so that’s so good.

    The Hospice nurses are so helpful. She is taking several different medications for things that before she just had to suffer through. She does sound a bit drowsy when we talk to her or see her, but I assume that’s the pain meds doing their job.

    I pray she can stay comfortable and at ease these next days, weeks and even months. She has been through a lot and this cancer has not been an easy.

    Hopeseeker

    • This reply was modified 3 years, 11 months ago by hopeseeker.
    in reply to: Now in Hospice #95938
    hopeseeker
    Participant

    KarenD

    She is doing well. She’s a spunky and upbeat lady. She has been taking amazing care of my MIL. The family seems to be taking it all in stride now. Everyday it seems my MIL is feeling better. She is yellow and has a lot of ankle and feet swelling, but is eating better and sleeping better too. Those things alone can make a person feel like new again!

    I am glad that the dr stopped the chemo. I feel it was really hindering her quality of life and that seems to be the case as she now is feeling somewhat better and eating a bit more.

     

    Positivity,

    Hospice nurses are doing a wonderful job and they have set things in place to make her time left so much more comfortable and the quality of care and time is better. It is very hard knowing the end could come in weeks, but hope we have a good few months instead of weeks.

    • This reply was modified 3 years, 11 months ago by hopeseeker.
    in reply to: Now in Hospice #95930
    hopeseeker
    Participant

    It seems Hospice care has been very helpful for my MIL. She has been feeling better since stopping the chemo and although she gets tired often she is able to rest better I think. We will be seeing her again this weekend and I hope for a very nice visit with her which seems to boost her mood and spirits very much.

    I am glad for the good days she has and for her feeling so much better since stopping chemo. Not much else to report but felt to share that she was getting good comfort care.

    in reply to: Now in Hospice #95921
    hopeseeker
    Participant

    Positivity,

    Thank you for your kind words. My MIL seemed to enjoy our visit with her last night. She is yellow again like she was back in March and the swelling in her feet and ankles is pretty bad. She is gettting compression socks soon and that is supposed to help some with the discomfort of the swelling.

    The dr and Hospice nurse have said she has about 4 weeks left. That seems way too soon though. I know they cannot predict that exactly. She is sleeping a lot and doesn’t eat much (a few tablespoons at a time), but she was alert when awake albeit very drawn and drowsy while we were there. She napped on and off with us there talking and visiting with her. She just is so exhausted. I know she  will be getting some better care now with the Hospice nurses coming.

    in reply to: Now in Hospice #95909
    hopeseeker
    Participant

    Dear Mary,

    Thank you for your kind words and input. Yes, that is right. She is often worried about being a bother. I feel my that maybe my husband and I need to talk with her very personally and make sure she knows to make her wishes known and that she is not putting anyone out by asking for help in regards to her pain or comfort level because that is what the Hospice nurses are there for. She is always feeling unworthy of help or anything good which is so sad to me. I hope she will be honest about her comfort level so she can be at ease.

    I will keep you posted on what is going on as time goes on. I very much appreciate your prayers and words of advice.

    in reply to: Hello -Husband diagnosed with Cholangia Carcenoma #95823
    hopeseeker
    Participant

    Katemarykate, so very sorry for your husbands recent diagnosis. There is a lot of great support, help, and advice found here and many amazing stories of survivors!! You can ask questions and just vent if you need to and the support and help is here.

     

    Sincerely,

    Hopeseeker

    in reply to: Xeloda #95815
    hopeseeker
    Participant

    Mary,

    Yes, her Xeloda are very large pink/peach colored pills for her chemo. She has Ben trying to follow the directions and instructions for her chemo (she’s 2 weeks in and 1 week off with 3 of the 500mg pills 2x a day)

    I guess I need to call her onc nurse and see if I can get some more answers and maybe a med change for her.

     

Viewing 15 posts - 1 through 15 (of 64 total)