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  • in reply to: Still alive and doing good #38806

    Hi all. Just finished 20 days in the hospital part of it for back surgery. That was a
    piece of cake. The other problem was serious blood in the colon, et all. The therapy
    was horrible care at the therapy clinic and back to the hospital for a colonoscopy.
    They finally got everything under control and home 5 days later.
    Just had my first CT scan after this round of SIRTS. Dr. was really pleased with this
    scan and don’t go back till Dec. 1.

    in reply to: SIRT #30392

    Went to Palm Desert for 3 weeks, first week was shot as I had a heavy duty case of food poisoning. Took me a week to recover, but happily I got in 8 rounds and it was great to see green grass. MY next scan is scheduled for April 7. Then I am on to the Liver Symposium in Dallas April 8-10, supported by YES. Yes is a support and advocacy group to work on liver cancer. Dr. Kennedy of Wake Forest will be there and when not leading a section will look at the records and will respond and make suggestions. I have been trying to get into experimental liver transplants but my largest tumor is 10 cm. and I find that the largest they will take is 3.43 cm. I have talked with northwestern university and am getting feeling that perhaps I could get a resection. Should find out soon. Well I am 17 months out. Better than the 8 months I was originally given. Still feeling good with no symptoms. Hope you all are feeling well and will continue. I will bring up the Whipple procedure with my onc and get his reaction. best to all Roger

    in reply to: SIRT #30388

    Hello all: Didn’t know how to get back to this site. Just found it today. Have had 4 scans since 2 SIRT procedures in J/Feb, 2009. No shrinkage, but no indication of tumors and everything has remained stable. 15 mo.s since diagnosis. Tried for experimental transplant at Mayo, Rochester. Got a very cold no. Tumor too big. Also my onc resubmitted my case aN Abbott northwestern in Minneapolis. Another no on resectioning. Onc says as long as I am doing so well he won’t do any chemo, so we are going to Palm Desert for 3 weeks of sunshine and 80 degree weather and of course lots of golf. What is a Whipple? Maybe I could try that. NOw that I finallly found this board again, a belated Happy New Year to all.

Viewing 3 posts - 1 through 3 (of 3 total)