huiyoungkim

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  • in reply to: what if #93574
    huiyoungkim
    Member

    thank you, Marion
    I am very happy that my mom is doing ok now and spend quality time toghther with family. Let us know what you will find about “aggressive ” treatment in terms of hospice care. we are getting a home nurse twice a week and i feel that is not helpful at all. all he does is checking blood pressure and ask how my mother is doing. i kind of wand to cancel the service but decide to keep for the future when she is doing worse later. Happy holidays!

    Sarah

    in reply to: what if #93569
    huiyoungkim
    Member

    Hi, Marion
    My mother is doing better after last discharge 2 weeks ago. At that time she had plastic stents inserted inside of original metal stent she had last September. Her jaundice is better and eating better last week. I just worry that in the near future she will have another episode of obstruction/ infection. We will take her to ER when it happens even though we will have to cancel hospice care. When I called hospice , they consider stent as aggressive treatment and have to discontinue the service. Of course we can resume hospice when she discharge from hospital. For now She does not get much benefit from hospice b/c mother is very independent with her activities. She is weak but still has no problems with ADL. I came back my home for a while and will go back to see her and stay. I ,myself has problem with sleeping now and very tired already. I know it will not long time but no one knows how long this will be, I want to my best. It just heart breaking to see my mom is fading away.

    in reply to: what if #93570
    huiyoungkim
    Member

    Thank you for the quick reply and caring words. i am from Phoenix but my mother lives LA area. She is staying with my brother now since we feel she should not be alone. She never had a oncologist since her diagnosis. Basically her primary physician took care of her until hospice care. i have been visiting her on and off and i will be helping my brother as much as i could for coming month. When they found tumor last December, the biopsy result was benign. But by this June she had chills and high fever, low appetite, which led to have stent and we heard the tumor grew . Since June she had to go thru 3 more admissions and more stents and flushing of stents. every 2 month or so it becomes obstructed and we had to go ER . Now she is under hospice as drs recommended. So far she is doing ok after flushing stents 2 weeks ago. But i am worry about it will be blocking sometime, what we have to do. My mom knows there is no cure but want to have symptom relieve treatment such as stents if possible. i talked with hospice people about it and they said it is up to us to go to hospital but hospice care will be discontiued. It will be heartbreaking to see her with jaundice and no appetite and nausea and fever and do nothing.
    Another thing that I was always wondering is her shoulder pain of last 3 yrs. Her Dr said it had nothing with cancer but i am sometimes suspicious of referring pain. Thankfully it is under control with antiinflammtory meds now after trying so much suffering. Her dr was so indifferent to her shoulder pain for 3 yrs, now he gave the meds working for her. i am sad and afraid of coming weeks or months. Just hope and pray that she will not suffer for a long time.

    te shoulder pain is under control with cerebrex, anti inflammatory meds,

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