ingenue

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  • ingenue
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    Thanks to all. Yesterday my husband had a low grade fever and was looking pretty yellow. We go for labs today, but stenting may not be that far off. I will send our Doctor the trials info and see what he has to say.

    ingenue
    Member

    Hello again Gavin,
    As I mentioned on the PDT thread, My husband was diagnosed with locally advanced cholangiocarcinoma in January of this year. He is about to begin his third round of Chemotherapy. However, this is another trial of great interest to me, especially since Regorafenib has Health Canada approval and should be available here. But once again, I am completely naïve of the process for participating in a clinical trial. Got any advice?

    ingenue
    Member

    Hello Gavin,
    My husband was diagnosed with locally advanced cholangiocarcinoma in January of this year. The first 6-week battle was to gain control of the unrelenting pain he was enduring. Once that was achieved, we started Chemotherapy. He has finished two rounds. Once the third round is completed, they will do a CT scan to see how well the chemotherapy is working. However, recognizing that chemo is not particularly effective, I started searching out clinical trials. Dr. Kahaleh’s PDT trial is of particular interest. However, since we live in Canada, I’m not sure what to do. How does one get into a trial? Can you participate in a trial even if you don’t live in the centre where the trial is being conducted? Does anyone have any insight/experience they could offer? Please advise. Thanks

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