izabella
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Hello friends…
The plan is to monitor Ca 19-9 and then if still high, he is starting with gem/cis…. So afraid of the side effects like neuropati.
When is a transplant an option? I dont get it why cant they just remive the whole bloody liver? Is the risk so high to get mets again? Mayo says bo because of the mets and Sweden is far behind Mayo and copies Mayo alot.
Can i donate my liver perhaps?
Forgot to say that his liver tests are all normal…. So strange? The tumor i growing but liver is ok?
Hi guys
We had a meering with the onc that said it looks good on CT but we wanted a second op with borh surgeons and oncologist together to look and judge the pics. They did that today. Phonecall today from another onc that said that the runor has grown. No mets visible but the tumor has since last scan in jan grown a bit. He said that it could be that the chemo isnt working.
Ca 19-9 is elevated. from 196 18/3 to 984 22/5.
So what should we think now? Try other chemo?
Try something else, give up? My dad is so tired with chemo, 5:th round now.
What do you die from? The liver collapsing? How long will it take before it invades the whole liver? I mean in other cancer types people often die because of the mets not from the primary tumor. How is it with klatskin?
I will call the onc tomorrow and ask for immuntherapy and targeted test (mutations). I dont know more what to do?
Is it possible to donate liver?
I did contact the biggest surgeon in sweden in GI and he also said that because of the metastats no one will perform a surgury. I also emailed Mayo Clinic as they are leading center. They gave me the same ansvwer: if he has small mets they cant do a liver resection and also no transplant.
When Mayo says no its seem like they know best.
What do you mean with targeted treatments? Is there any tests for this just like chemo test?
What do you say about ca 19-9? I have read alot of studies and although its significance is debated its not a good sign for my dad to have so much higher now then before chemo
I have also looked up trials in Sweden, but nothibg is ongoing right now.
Thank you so much for your answers, i appreciate it alot
