jamie-d

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Viewing 15 posts - 196 through 210 (of 228 total)
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  • in reply to: Chemo delays..am I a chemo washout? #29094
    jamie-d
    Member

    Kris;
    I had 7 months of Gemzar/Xeloda after I was first diagnosed. I was on a 3 week on 1 week off schedule. After a few months my white cell count started getting low when I went in the 2nd week for infusion. The Dr I see for accupuncture started me on Echanacea. She adjusted the dose based on my WBC. I think at first I took 1/4 dropper twice a day and the last few months she upped to 3X daily after the first week of chemo. What was interesting was that I never ended up missing a dose until the 7th month. They would give me the 2nd dose even though I was low and when I came back for the 3rd dose my counts were always higher. I told the nurses it was because I took the Echanacea after the 2nd dose when I knew my count was low. I do believe the chemo has a cumulative effect also. Each month the counts got lower and didnt come back as well after the week off. When I tried doing chemo after my resection I didn’t tolerate it at all. Counts really bottomed out and I couldnt take the 2nd dose. Ended up not doing anymore after the 3rd dose.
    Another thing I did when I was on chemo was get an ionic foot bath on the week I was off chemo. She said it would help get rid of the toxins, etc from the chemo. They did not recommend it the weeks I was on chemo, only on my off week. I don’t completely understand alot of the alternative options I have tried but I do trust the practitioner I use and therefore what she has had me try. If you could find a source for echanacea drops or a practitioner that could guide you it might help. I know what you mean about being disappointed when you can’t get the chemo. I was afraid if I missed a dose I had somehow not done my best. I think we need to try and do the best we can and not beat ourselves up when our bodies don’t keep up with our minds. Our bodies probably know more than we do and just needs a break to regather it’s strength. You are a fighter. You are doing an amazing job of fighting this war with cc. If you are interested in finding a practitioner/accupuncturist and need help let me know. I could check with Fiona. She was originally from Europe so she may be able to help. Give yourself a big hug from me and feel free to email me if I can be of any other help. God Bless,
    Jamie

    in reply to: new member #28684
    jamie-d
    Member

    Dear Eleanor,
    I was on Xeloda and Gemcitabine when I was diagnosed. I had the fatigue long before I was finally diagnosed. I cant offer any info on Ritalin but I would suggest trying to keep up your strength and immune system. I believe there are many posts about supplements and nutrition here. I think Milk Thistle seeds are a real benefit for helping the liver. If I can be of any help please just ask. God Bless and have a wonderful weekend.
    Jamie

    in reply to: Hello #28933
    jamie-d
    Member

    Hello and Welcome,
    Just wanted to say hello. I think your Mom is very lucky to have you. As a patient, I would want to be made as comfortable as possible when my time comes and it sounds like that is what you are doing for her. I can relate to dealing with family. I was an only child but my husband is the oldest of five. I used to complain that I hated being an only child when I took care of my Mom (Alzheimers). No one to bounce ideas off. Turns out it was alot easier than trying to deal with siblings when you have one thats as you say “irrational”. Keep us posted on how things are going. You and your Mom will be in my prayers.
    God Bless,
    Jamie

    in reply to: Hi, I’m a new member #29016
    jamie-d
    Member

    Welcome onlygirl.
    I do not have any experience with radiation so can’t help with any info on that but wanted to say welcome. I will keep you and your Dad in my prayers. God Bless,
    Jamie

    in reply to: More good news…. #29006
    jamie-d
    Member

    Mary;
    What great news!! I know what you mean about never knowing if we’ve made the right decision. This disease doesn’t play by any rules and certainly doesn’t play fair. I think for me the best thing I can do is get different opinions and then talk about it to others and most importantly pray and turn it over to Him. Easier said than done sometimes but I try :) Have a great summer. God Bless,
    Jamie

    in reply to: Finally heard about Avastin #28017
    jamie-d
    Member

    Hollie;
    I just want to echo everyones sentiments about your Aunt Sophie. You all will be in my thoughts and prayers. I’ll say a special prayer that you have a safe drive to the Sierras. I was born and raised in California and lived there all my life up until 10 years ago. I have great memories of the Sierras as a kid with my parents. Drive safe and have a wonderful visit with your family this weekend. God Bless,
    Jamie

    in reply to: Any news on Rose #29008
    jamie-d
    Member

    The last I heard she was going home on Monday and was on Hospice care. Rose and I had emailed back and forth because we only live about 3+ hours apart. I had hoped to get down to see her after her resection but then the resection didnt happen and things seem to have gone down very fast since then. I emailed her Mom but havent heard back yet. If I hear anything else I’ll post it. I know Rose and her family would appreciate all our prayers.
    Jamie

    in reply to: Jeff G Has Gone to A More Peaceful Place #28636
    jamie-d
    Member

    I just saw this post and am so heartbroken. Like many others I so appreciated Jeffs posts. My prayers are with his family during this time. He will be greatly missed. God Bless,
    Jamie

    in reply to: new member #28675
    jamie-d
    Member

    Welcome to our group. Let us know if there is anything we can do.
    God Bless,
    Jamie

    in reply to: My mom and dad are gone #28593
    jamie-d
    Member

    Dear Natasha;
    I can only echo what everyone else has said. I am so sorry for your loss, especially losing both your parents in such a short time. I pray that you may find peace and comfort during this time. God Bless,
    Jamie

    in reply to: Supplements? #28659
    jamie-d
    Member

    Hi Karen;
    Supplements I use and would recommend are:
    Milk thistle seeds
    Genesis – a whole food antioxident juice w/resveratrol and ellagic acid
    Advanced Omega
    Essiac Tea
    Kefir
    Pro-biotics
    Echanacea drops as needed
    Vit D3

    God Bless,
    Jamie

    in reply to: Where to find milk thistle seeds? #28556
    jamie-d
    Member

    Hi Sarah;
    I get mine from my chiropracter/accupuncturist. There is also a herbalist locally that I think has them. I don’t know where you would get them online but if no one else has ideas I can ask my local supplier if they have any ideas where you could get some. At first I took capsules that I got from our veterinarian and they may be more readily available online. You might want to try and do a search for herbalists or accupuncturists in your area. Let me know if you want me to ask my local supplier.
    God Bless,
    Jamie

    in reply to: Questions to ask #28581
    jamie-d
    Member

    Hi Karen;
    When I had my resection I knew they were taking 65% of my liver and a metastasis on my colon. I went in thinking I was having a bowel resection also but it ended up I didnt need it. He was able to lift it out because it turned out it wasnt attached to the bowel. During the surgery they found another met near duodenum and took it out along with my gall bladder. I dont remember them telling me about the gall bladder before but I may not remember. I was just so grateful that he was willing to do the surgery since I was told I was inoperable 7 months before. (Had an open and close surgery) This time I didnt care what they took out as long as it might help although we never discussed it. As far as the questions the main ones I think of are what they are planning to do, risks, recovery and what to generally expect. I’m not sure if this helps but if there is anything else I can do just ask. I will keep you both in my prayers. God Bless,
    Jamie

    in reply to: Approved for Soc. Security disability #28575
    jamie-d
    Member

    Lisa;
    What a blessing that things went so smoothly. Have fun and enjoy your retirement!
    God Bless,
    Jamie

    in reply to: Having a good cry today. #28503
    jamie-d
    Member

    Dear Jill;
    I have added your aunt Etnah and uncle Gary and you to my prayer list. I truly believe in the power of prayer. My prayers and good thoughts are being sent your way. God Bless,
    Jamie

Viewing 15 posts - 196 through 210 (of 228 total)
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