jamie-d

Chrissy I am so very sorry for the loss of your beloved husband. I will keep you and your daughter in my prayers. God Bless you and your family.
Jamie D

Johanna, I was originally seen by Dr Quevada at Mayo in Oct 07. I did not “click” with him and changed Docs after a couple of months. I was also told that resection was not a possibility and that I was looking at months. I started on Gemzar/Xeloda and had a good response. In June 08 I had a 65% resection of my liver. Most surgeons wouldnt have tried but I was blessed to see Dr. Nagorney and he agreed to give me a chance. I went a year with clear scans but then it came back in my lungs. At that time the oncologist told me 6-9 months. This Oct will be 4 years since I was diagnosed. I have left Mayo and am currently being seen by the original oncologist I saw. I prefer his attitude and beliefs. He knows I dont want to give up yet and want to fight this and he is willing to fight for me. For me one of the most important things was feeling comfortable and trusting of my Dr. It may change along the way and I saw 3 different oncologists at Mayo. Each had their place in my treatment but when I felt I needed something different I wasnt afraid to move on. I am currently on Folfox and had a scan last Thur. Drs nurse called Friday to let me know it was improved but will get details at appt tomorrow. They have had to decrease dose and frequency because of low platelets. Do not give up the fight. My odds were dismal when I was diagnosed and told it was impossible when I asked about 5 year survival. I want to prove them wrong. All they can tell you is about statistics, but we are more than statistics. I have a strong belief system and believe that God is the ultimate healer and will determine how many days I have in this world. If you want anymore info about Mayo or just would like to chat, feel free to message me and I can give you my number or we can email. Also, if you would like to meet when you are at Mayo let me know when you’ll be there. I live about an hour north of Mayo. Take care and keep fighting!!
God Bless,
Jamie

Boy Missy your post really hit me hard. I feel exatly the same way. In the beginning people called, stopped by and now I hardly hear from anyone. What is the hardest is my own daughter. She turned 20 this summer, got married to a guy she only knew a few months, is expecting a baby any day, which was one of my goals to live long enough to see a grandchild (thought it would be her older brother). She has cut me off entirely the last 4 months. She wont call or visit. I dont know whether I will even be allowed to see my grandchild (in Dec/Jan I was so sick and hospitalized twice, I didnt even know if I would live to see the birth). She talks to her Dad when she wants/needs something but ignores her brother and I. Long story but I think the husband and mother-in-law have alot to do with it. But bottom line is I am her Mother and she shouldnt allow anyone to manipulate her into doing what she is doing. There are no do overs. She cant take back that they wouldnt come for Christmas after they had promised they would. That could be my last and they ruined it for me.. I cried most of the day. Everyone says that she will regret it someday. It hurts more than I can describe but as my son told me, I have to concentrate on the positives and staying alive as long as I can. I can’t do that if I am crying and depressed all the time. So I am somewhat at the point where I say to heck with those that choose to not enjoy my company while I am still here. They wont have the opportunity when I am gone. I enjoy those that are here and do care. Focus on the positives and what you do have not what you dont. I’m not saying it is easy, it took me months to get to this point and there are still days that I am disappointed and hurt. WHen I read other daughters taking care of their Mothers and missing them it really hurts. The cancer was really growing when I was at the lowest and now that I have started focusing on my son and the positives I had a more stable scan last time. Stress really does effect you. Even my oncologist said that the situation was having a negative effect on my health. Sorry to ramble on but I guess my point is that we cant control how others act. I feel like others have posted, that you are there for friends and family when they are in need. Alot of people run from illness or when the going gets tough. Give his parents the benefit of a phone call talking to them honestly. As a parent nothing would keep me away from a sick child, as a child nothing kept me away from taking care of my parents. Unfortunately not everyone feels the same way. Like others have said, they will regret it later.. but that will be there problem. Sorry again for the long post, but this topic really hit me hard. I know exactly what sadness Kevin is feeling. Take care and God Bless,
Jamie

Hans, thank you for the update. I am glad that you didnt have any problems bringing her home. She was so blessed to have you as her husband and have you in her life. We all miss her wonderful posts and presence on this board. May God Bless you during this time. I will be thinking of her and saying a prayer for Kris on Saturday.

Jamie

Great news!! So happy for you and your family!
Jamie

Lisa, I dont know what to say. I am so sorry to hear this news. I have been having a few conversations with God lately about giving us more than we can handle. I’ve been sharing with Him that I think He overestimates me I know you and your family dont need more to deal with. I will add your Dad to my prayers along with the rest of your family. I will pray that they got it all and there are no other signs of it. If there is anything I can do dont hesitate to ask. God Bless you and your family.
Jamie

Dear codergirl, I am so sorry for your loss. You were such a loving and compassionate daughter. I know that you made your Moms last days wonderful. She had a wonderful Christmas, birthday and New Years. You were with her and let her know she was loved. Take care of yourself now. God Bless,
Jamie