jamie-d
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I awoke this morning to see a facebook post that Kris had passed away. Although I never met her in person, like others, I feel that she was a dear friend. The tears have flowed today, I was so hopeful that the new treatments would be successful and she would be able to return home to her kitties and have many more years with her husband and loved ones. To Hans and her family I will keep you all in my prayers. I am so sorry for your loss.
Jamie
Beth;
I am so sorry to here of the latest news. I have been following your posts on his Caring Bridge page. Like others have said maybe Doc is wrong, if not, there are still miracles that happen everyday. You are so strong. Keep the faith and know that there are many of us that are lifting you both up in prayer. Take care and God Bless you both,
Jamiemarions wrote:Jamie….I wonder why you had such a reaction to the Xeloda when in fact, you had already been on it? Had the dosage been increased?
I sure am glad to hear that you are on the mend. I am crossing my fingers for a spectacular CT scan report especially, after having to go through these tough two weeks.
Tons of good wishes,
MarionMarion;
When I was on Xeloda 3 years ago I was on 2600mg/day. I was also on Gemzar. This time I am just on Xeloda and the dose was increased to 4000mg/day. The last month has been tough. I am hoping and praying for a good Ct report also but am concerned that even if the Xeloda was helping that I may be unable to tolerate it, My hands and feet are still sore and peeling even though I’ve been off it for 3 weeks now. The Dr did say that maybe if we cut the dose I could go back on it but he wasn’t sure. Not sure why I have had such an extreme reaction or if it is just from the chemo. The Dr said it is extreme and has lasted much longer than he would have expected so he may do additional tests next week if I am not totally back to nornmal. Thanks for the good wishes. I hope that everyone has a wonderful holiday season.
God Bless,
JamieLainy I cried through the whole poem. It was a beautiful tribute to your “Prince”. God Bless you,
JamieDear codergirl;
I am so touched as I read your post. You sound like such a loving daughter. I can only speak for myself as a patient what is important to me. That is family and friends. I love this time of year and decorated as much as I could and my son helped what I couldnt. I think cooking a good meal so she can be part of it and at least smell it is great. I think looking at old slides would be wonderful.. to recall all the good times in my life. Just be there for her and let her know how much she is loved. My 20 year old daughter doesnt seem to even care. I hurts more than I can describe. My son is loving and caring and gives me a reason to fight for everyday. Dont doubt your decisions… they are done with a loving heart and that is what counts. She knows she is loved and that is the greatest gift I believe that anyone can give. I hope you have a wonderful and blessed Christmas. Just enjoy the day and time with family. Take care and God Bless,
JamieSistercorb;
You and your family are in my thoughts and prayers. Your Dad sounds like an amazing man. He’s doing it his way. I can totally understand his wanting to be at home on his mountain. I was in the hospital for a week recently and all I wanted to do was go home. I felt so much better when I got home. He is blessed to have such a loving daughter. I would give anything to have my daughter care about what is going on with me and to be there for me. Enjoy this time with him. I pray that you have a blessed Christmas with him. God Bless,
JamieMarion the name of the shots was Octreotide. He also had me on 2 Lomotil 4x daily. Have finally been able to sleep the last 2 nights. Based on PCL’s info I was obviously a grade 4. I dont know what the plan will be going forward. He didnt give me round 4 so I will be off for 3 weeks. Am scheduled for a CT scan on the 27th that was supposed to be after round 4 to see if it was working. Will have to wait and see what will happen next. God Bless,
JamieKristinC wrote:I am currently taking Xeloda and Gemzar. I actually am the opposite of you. I have constipation. The whole 2 weeks and have to take fiber bars every day. My oncologist told me that they normally see diarrhea and less constipation. Best wishes and hope you get to feeling better. Bless you
My first treatment was Xeloda and Gemzar. It was very effective but had to stop combo because of low blood counts. Had to start shots to raise white count so had to stop Xeloda. Gemzar alone did nothing so now they are trying Xeloda alone. Best of luck and I hope you get great results! God Bless you,
JamieI have been on bloodroot extract for over a year. I have not heard of pill form, I get it from a local herbalist and it is a liquid. I also tried a more concentrated paste but was unable to tolerate it. Feel free to contact me if I can be of any help. God Bless,
JamieSending lots of prayers for you and Teddy your way. God Bless you both. I pray for a peaceful transition for Teddy.
JamieLainy,
I don’t know what to say that hasn’t already been said other than my thoughts and prayers are with you both daily. You and Teddy have been an inspiration to me. Your loving care is remarkable. I just hope and pray that when my time comes my family is as loving and caring as you have been. Teddy has been blessed to have you as his wife. God bless you both,
JamieLisa,
You’ll be in my thoughts and prayers on Friday. I’m gonna be optimistic that the scan results will be good. Hope the ERCP went well today. Take care and God Bless,
JamieI think Patty said it all. I dont think there will be a dry eye when reading your post. I dont know what else to add other than my prayers will be sent for you, your sister and family. God Bless,
JamieKris;
I’m sorry that the Home Health Team are being ridiculous. I cannot believe that they are throwing up so many roadblocks to your going home. It really makes me angry when health care professionals do not do all they can to support their patients. Sleeping in your own comfy bed would help. Well I’m just gonna start praying that someone knocks some sense into them and that the doors are kicked wide open not just half opened windows . I hope you get news on Germany soon. Know that you have lots of prayers coming your way. Take care and God Bless,
Jamie
