janecw
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Thanks Jeff, I will. Caroline is full of high spirits at the moment we are doing the race for life in June this year, her idea. It is for cancer research uk. Caroline works for cancer research so she knows how important it is to research in to the more uncommon cancers like this, as they don’t get the research they should.
We have to beat this cancer and all cancers, I know we will and I can’t give up
Jane x
Thanks Jillie thanks Kris, I appreciate your posts. I hate that your are both suffering. Yet in all of this you take the time to consider feelings and pain of others you are truely fantastic people.
I have never been one to pray but the other night I taught my 5 year old daughter, Lara a prayer that I knew as a child. She repeated it after me and especially blessed her Auntie Caroline, she will bless you both too I promise!
Thank you for your messages it is funny in a way but I get some sort of relief from response to my posts. Sometimes I feel my sister doesn’t tell me the whole truth and I feel that is her right but in a way that makes me worry all the more. From the moment she was diagnosed I would do anything to change it. I have three young children who quite obviously don’t know their Auntie is ill and they all love her so much and as childen are think she will be here for ever.
I don’t feel I am the carer I should be, we live quite far away from each other and this prevents me seeing her and helping her as frequently as I would like. My children go to school, I go to work every day yet I know she is suffering and I should be there. What is the answer? I dont know, I continue to do the things with my children like I always have yet things are not the same as they once where. We have all changed , we of course have had fantastic news and I so want this to be the start of things to come.
My sister: although we fought as children has been the one that will support, advise me (she is so more educated than me) I was always the naughty one or at least the one that always got caught! She looked out for me at school and made sure I was ok and I was so proud she was my big sis.
I take her advice on work issues and all other matters and although I don’t always agree deep down I know she is wise and I’m a bit of a fool, (I’ve never admitted that!)
I just want her to be ok and I now want to look after her!
Robyn, I am so sorry for you and Rick it’s so unfair and cruel why does this happen to you and all these kind good people. I can only imagine the pain you have been through I don’t know whether this is the right site but I can’t pray and believe in God, I’m past that, nobody good and kind would put good people through this.
I’ve seached for positive news for weeks and it hasn’t come. I’m fnding it hard, very hard, your pain must have been so unbelievable and I don’t know how you cope with that.
I don’t even know how to end this post so I’ll just go take care of yourself please you deserve that x
Kris you sound such a wonderful person. You have always taken the time to respond to my messages despite your own pain and suffering and for that I thank you. I realy hope that you recover from this dreadfull illness and live the life you deserve.
I am pretty new to this site and sometimes when I read some of the posts I don’t fully understand all abbreviations used and medical terms and I then attempt to search for the meanings. Kris when you were first diagnosed had it spread further than the liver. I’m trying to establish if surgery can become an option if the cancer becomes contained following initial diagnosis that the cancer was secondary.
Be strong Kris and I really hope it works out well.
Jane UK
Hi Andy,
So very sorry to hear about your Mum. It is so very hard to take this news when you love and care for someone so much. My sister was diagnosed back in late November early December she lives in Cheshire but is being treated in Mancheser’s Christies hospital where she is under Dr Valle. He does appear to know his stuff as I myself questioned why my sister was not being offered surgey as this is gives you the best possible chance of recovery.
He explained this to me quite well.I do however find that consultants appear a bit too honest at times and can almost crush all hopes. This I find quite frustrating and don’t know whether it is just unique to UK Doctors and elsewhere in the world they have a different approach. I firmly believe that you should never give up hope and remaining hopefull has an impact on your loved one. I for one can’t imagine giving up and I can’t allow my sister to either she is only 42 with a young family.
Have you asked why they are offering no treatment, don’t be afraid to ask questions. I wasn’t happy with the initial course of treatment offered to my sister as I wanted it to be a positive we can make her better. I don’t think it is that easy to simply change consultants in the uk.
Good luck try to remain strong
Jane UK
Great new Lisa wonderful to hear positive results. Keep strong your a real inspiration to us all.
Jane
Hi Jeff
Thanks for your response what type of treatment did you switch to? did you find that to be as effective in treating the cancer as gemcis? My sister has been told that the side effects should not be too bad so I was quite surprised to see that you suffered quite alot on this treatment. I hope your well at the moment and wish you the very best.Hi Lucian thanks for taking time to reply do you know the name of the alternative treatment your partner has been on that seems to have had posive results? Good luck and I hope it continues to work well for you both.
Thank you to Kris also you are right my sister and I have always been close but this has brought us closer and it makes you realise how special your family is, good luck to you all.
Hi Amilcar so sorry to hear about your Dad I hope his treatment proves successfull keep hoping and fighting, thanks for replying
Bill,
Thank you so much for your response your message has given me great hope, I too believe that my sisters age will be of great advantage and to know that your wife has survived this dreadful illness for so long is fantastic news.Trying to get another opinion however can be difficult as how do we really know that we are not already being given the correct treatment and advice when you are not given an alternative. We live in the UK however I would go to the ends of the earth if it would help her.
Thank you again for your response and i really do wish you and your wife all the luck in the world.
Karen, thank you for your response I am so sorry to hear of your husband it must be heartbreaking for you and your family. We have been informed that this particular type of chemo has minor side effects and has now progressed into phase three of it’s trial, the results so far have been promising. Although just how promising is unknown as I have simply not been able to find anything significant about the trials. We do know that she will not loose her hair which I am pleased about. I truely hope we see that the treatment start to have an impact soon and she starts to feel the benefits. I am certainly not giving up and I won’t allow her to either.
I certainly wish you, your husband and family all the luck in the world.
