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  • in reply to: Six weeks since I lost my sweet husband #68252
    janetinfl
    Member

    I hear where you are coming from. After 7 months I don’t like to leave the house. For some reason I feel safe there. Right now I am with my son and his family in North Carolina. My son is the only one that can get me out of the house. I am now thinking of doing some volunteer work at a school near me. Maybe I can get out of this slump if I feel like I am needed somewhere.

    We took care of our spouses during their illness and now there is nothing. We must replace that nothing with something. Maybe going back to work will fill your days. We all need to “find a life” without our hubbies. I think it is the hardests thing we will ever face in our life.

    In addition we can’t expect people to understand us. We can hardly understand ourselves. We are told time will help. Time will heal the scar, but the scar will never go away.

    And yes we should appreciate the time we had with our spouses. Not everyone experiences a close marriage. I know I am grateful for that, and that thought does help. Hang in there kiddo. I understand every word you typed.

    in reply to: feel like im going crazy #68010
    janetinfl
    Member

    Wow, do I identify with the last week you had with your husband. It has been 7 months since I lost my husband and I have many times that the last day of his life goes through my mind like a dvd also. The picture I can’t get out of my mind is his last breath. At the time I was so relieved for him because he wouldn’t suffer anymore. I try to keep that thought which is rational, but many times the emotional takes hold of me.

    I found pictures of him on our computer when he was healthy and so good looking. I even went through pictures of us in college. We were so young. That really helped. I have also had dreams where he ends up hugging me. I wake up and thank him for that. What I miss are the hugs.

    I am told it will get easier. I thought these people were crazy, but I have to admit with time I am learning to be alone. I know things will never be normal again, but I must go on for my grandkids. That is the only thing that keeps me going. We widows must walk this walk and find a way to go on. I haven’t figured that out yet, but time does help.

    in reply to: Coping with my dads diagnosis.. #66354
    janetinfl
    Member

    My husband at age 66 was diagnosed with state 4 CC. He lasted 9 months with chemo, radio embolization, and chemo embolization. He had to stop chemo because it was damaging his kidneys. I thought he would have at least 2 years with all this treatment. I sometimes wonder if he would have had a better quality of life without all of this. The treatments made him really sick.

    I don’t know what to advise, but I hope this story might help your dad decide. What ever he decides, please get hospice. I think they can help stabilize him with pain etc.

    Take each day at a time, and spend as much quality time with your dad as you can. Each day is precious at this time.

    in reply to: Grief Stricken #64519
    janetinfl
    Member

    My husband died 4 months ago at the end of this month. I really feel for you girls that have children still at home. My youngest is 36. I just came back from a 6 week visit with he and his family in North Carolina. Being around a 5 year old grandson and 4 month old granddaughter did me a lot of good. I was a mess when I arrived, but feel somewhat more centered. I have been home a week and a half, and………well………it is hard to be alone.

    What has helped me a lot since my hubby died was a book “Heaven is for Real”. My cousin mailed it to me. Wow is all I can say. You see I worried about Pete for 9 months, and my main concern was wondering if he is ok. After reading this book, I know that he is. It has been a real comfort for me. I don’t know if this will help anyone going through being cut loose from a spouse, child, or any relative; but it has given me some peace. I know I still have to adjust and figure out the rest of my life, but not worrying about Pete has lifted a great burden off my shoulders.

    in reply to: my deerest hubby lost his battle #63166
    janetinfl
    Member

    I am so sorry to hear about your loss. I lost my husband of 45 year 2 months ago. Yes it is very lonely, but after 2 months I am sort of finding some sort of peace. I know he is in a better place, but I finally came up with a word to describe my feelings and that was “empty”. I still can’t sleep on his side of the bed, and his glasses are next to his computer. I finally started using his towell rack 2 days ago. Habits are really hard to break. It is still hard to go to sleep at night, but I pray to him everyday. I know he hears me. You will begin the journey, like me, to find a life after hubby. I don’t know what that is right now. I am told that God doesn’t give you what you wish, but what you need. We don’t really know what we need, but I think with his help we will discover that in our journey into widowhood. I really feel for you and all those that have lost their mate. It is a journey I wouldn’t wish upon anyone.

    Please take care and take deep breaths. Break down when you can’t stand it anymore. I feel much calmer when I do that. Tears are the water of love.

    in reply to: Researching demographics on environmental causes #62681
    janetinfl
    Member

    Thank you Lainey. I wish I could help all these patients and caregivers. I read and identify, but have no advice. I have been almost 2 months since my husband died. I don’t know what we would have done differently. I sometimes wonder if he had no treatments maybe his quality of life would have been better. Who knows. I just know he was a fighter. We just can’t go back and say “what if”. You must make the best decisions possible and live with them. My husband was so brave. He never complained once. He was the strong one. Now I really feel lost without his strength. I wish I could help all of you out there.

    in reply to: Researching demographics on environmental causes #62669
    janetinfl
    Member

    My husband had prostrate cancer and died of CC. We were in the airforce for 10 years. Lots of planes. He was also a missile safety officer at Patrick Air Force Base. He said he inspected many dangerous chemicles used by the the shuttle and other missile systems.

    in reply to: question about external bag to drain bile #61048
    janetinfl
    Member

    My son wrote them email about his dad. I thought I would share it with you.

    The high school he taught and coached ar are giving him a memorial in the cafeteria. Everyone will bring food and there will be an open mike.

    This is the email.

    As many of you know, My dad (a.k.a. Coach Campbell) passed away yesterday afternoon after battling cancer this past year. His journey ended very peacefully with his lovely wife and in no better location then at home on the lake.

    He wished for no funeral and has actually donated his body to science. Yes, after a life of dedicated teaching, he wanted that journey to continue. However, he is getting no such luck in people not making a big fuss about him. The community and the high school will be holding a service for him this Wednesday, June 6th at Clay High School (Clay County, FL). I don’t expect you guys to attend, but selfishly wanted to let you guys know that my dad is awesome and he touched so many lives that they are putting on a big shindig just for him.

    I want to thank everyone for their warm regards. Sorry if I have not responded back to your message or calls, but hope to soon.

    Miss you all and as I my pappy would say, “Stay Low”

    in reply to: question about external bag to drain bile #61044
    janetinfl
    Member

    Yesterday my husband died at 1:04pm. He had been placed in hospice after his bleeding ulcer and was suppose to come home Tuesday. I called hospice on Tuesday to ask when he was coming home. They told me he had taken a turn for the worse, and did I want him home. I couldn’t make that decision until I had seen him. My friendand I drove to hospice. Once we got there Pete was totally out of it. The doctor told me he was in what they call (the death throws. He told me if I took him home I would just have him back there the next day. But my gut was screaming at me to take him home, and I told my self I was being selfish. I needed to do what was best for Pete. So after all of the talking, I gave in and said he could stay there. I would spend the night with him.

    Within minutes 4 women took me out of the room to a sitting area, and basically told me I could have him at home and have 24 hour nursing care until he died. It was called something like crisis care. At this point I was so confused and upset that I didn’t know what to do. But my gut told me I wanted him home for me. They make all the arrangements and by 5pm he was in his home and safe. I think he knew he was home.

    Since he got home his breathing was loud. I knew he wanted to spit, but couldn’t. I think the nurses thought I wouldn’t be able to handle that, but I told them I had been through much worse with all the chemo, etc.

    The next day at some point in time I went outside by the lake and prayed for God to take him. I knew he wouldn’t want to be in the condition he was in. I think it was an hour later that his breathing changed. I cradled his head and asked if he dying. The nurse thought he was. I just held him and told him, he was going to be healthy and well again and always with me. They allowed me to be with him for over an hour before he was taken away. I layed in the bed with him and just cuddled with him. In a strange way it was a beautiful experience.

    I am now so much closer to God. He actually answered my prayer. I will always be grateful for that and thank him every day. That spiritual power is so strong.

    In conclusion the hospice nurses called the number of the company called MedCure. The nurses told them the condition of his body. I was told by MedCure that at the time I applied he would have been accepted, but if he lost 10 more pounds they wouldn’t take him. But I told Pete he passed the test and hopefully his body will teach someone about this terrible disease. He will be a teacher to the end.

    For all of you out there that are fighting this disease. Fight it with all that you have, but when you have lost all your strength don’t be afraid of death. I know that in the debths of my being that we will all be in a safe place someday. I don’t know what else to say to you to help you along your journey. Pete fought this cancer for 9 months. We had hoped for more, but it wasn’t to be. God be with all of you. By the way I am not going away. I will keep coming back to this forum and hope I can help some of you along this journey. Thanks and love to you all……………….janet

    in reply to: question about external bag to drain bile #61039
    janetinfl
    Member

    Thank you so much for your replies. Pete is now in a hospice facility. I want him home, but they need to stabilize him on the medications for amonia levels, itching, and pain. Once that happens I can have him at home. Today he was talking but would fall asleep. Then he would wake up and continue to conversation. He is saying things that are really weird. He told me the doctor said he was coming home tomorrow.

    When he still is itching even though he had medicine for it, I would lay in bed with him and scratch him for a while. Then I would hold him and he would get real calm and fall asleep. I feel so blessed that I can do that for him.

    He wants his body donated to science. We have talked about it in the past, but hospice helped me with all the paper work, and it was completed today. Now I can concentrate on him.

    I am told his amonia levels at some time won’t come down with medication, and he will just go to sleep. He won’t wake up again.

    I now am on tranquilizers that make me feel like I can handle anything thrown at me. I also have a long time friend that drove up from central Florida that will stay with me until whenever. I cherish this because all our family is on the west coast.

    Tomorrow I am told to have a priest come in to give Pete that last rights. I will continue to be active on this site. If I can help anyone in this situation, I will try. Love, and thanks to all of you that have given me information to know what this disease is all about. It has prepared me for what is ahead for me and my best friend and lover.

    in reply to: question about external bag to drain bile #61035
    janetinfl
    Member

    I took my husband to the emergency room last week. He ended up having a bleeding ucler and was really dehydrated. He was stablized and moved to a hospice unit in Jacksonville. The external drain has been cancled, and he is tired of everything. I am hoping he can get stablized with pain medication so that I can bring him home. Our son flew from North Carolina and really helped me, but he went home last night and said his good-byes. I am all alone this morning, and trying to keep control of myself.

    The doctors say he has days or weeks. It has happened all so fast. It has only been 9 months since diagnosis. Our 45th wedding anniversary is next month, June 17th. I am going to miss him more than life itself. This will most likely be my last post. I thank you all for this forum and all your help. Janet

    in reply to: question about external bag to drain bile #61033
    janetinfl
    Member

    The Mayo called again and changed the appointment for Friday. The past 2 days he just sleeps. Therefore he isn’t itching. Why is he sleeping so much. I go into the computer room, and he falls asleep in the middle of typing an email. This really has me concerned. Should I be? Is this normal when the b-rhythms are elevated.

    The only pills he has taken is the Doxepin and one Tramadol. Is this why he is sleeping so much.

    I can’t believe how much he has gone downhill in the past 2 weeks.

    in reply to: question about external bag to drain bile #61030
    janetinfl
    Member

    The Mayo called this morning. He has an appointment to put in an external drain at 7:30am. He had an MRI last week, so I imagine they think it is possible. I don’t think he has any other choice at this point.

    Thank you for all your replies.

    in reply to: question about external bag to drain bile #61025
    janetinfl
    Member

    I typed this……….

    I am under the impression they are certain they can bring down his b-rhythms for more therapy. But a drain would help with his itching.

    I meant to type the word Can’t. They aren’t certain they can bring down his b-rhythms. So is a drain worth it to relieve the itching?

    in reply to: Slowed Peristalsis #60023
    janetinfl
    Member

    My husband takes 2 dulculax at night. It has helped somewhat. I noticed you are from Jacksonville. We are just south of you in Clay County. I imagine you are going to the Mayo Clinic in Jacksonville.

    Dr. Sella at the Mayo just prescribed a pill for my husband for itching. It has really helped with the constipation and helped just a little for the itching.

Viewing 15 posts - 1 through 15 (of 33 total)