janine
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janineMember
Thank you all for the advice and information. I will run with this. Prayers are with you all.
janineMemberThank you, I will look him up.
peony wrote:Janine, since you are in Ma, ct area you may want to consider taking a trip to NYC. My husband is going to be seeing Myron Schwartz and others have seen him as well. He has expericence with this type of cancer and very highly thought of. Good luck
PeonyjanineMemberHi Kelly, we had a second opinion with Dr Cha. He is in with Dr. Salem at Smilow. He was the one that told us it looks like CC. My mom started her chemo in december and is almost done with her first round. We go to Hartford Hospital Cancer Center. Dr Seigle is the oncologist. I would love to keep in touch with this to bounce things off each other. Thanks.
Kelly wrote:Janine, I am also in Connecticut. My mother was told this past Friday that it is likely cholangiocarcinoma. We have not yet had a biopsy done and will know more tomorrow about the next step we need to take. My general practicioner suggested Cancer Center of America in Philedelphia, however there seems to be a lot of people on this board with first had experience and knowledge so I will continue to “shop around” but we should keep each other informed as we are both in the same general area. I am looking in Smilow Cancer Center in New Haven now.janineMemberWe went to New Haven and the doctor there told us that depending if chemo helps then it may be possibly resected. We will know after her next scan. My mom is 65. I don’t know of a stage yet. Her currant oncologist said he does treat patients currently with cc. Thank you so much for your input.
Lainy wrote:Hello, Janine and welcome to our wonderful family, although I am so sorry you had to find us. We do have a Hospital site on our Discussion page which lists various tried and true hospital from our Members. Have the doctors ruled out Surgery? May I ask Mom’s age? Did the docotors give you a Stage? Please make sure they have treated CC before as many have not. You want to find someone familiar with CC. You may want to do a bit of reading up on CC as to be forarmed is to be ready. If you can give us a little more info that would be great and please keep us posted on Mom. -
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