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Hercules, you are my HERO, I was so excited at conference to meet the famous “Hercules”!! I finally had met some one with more CC longevity than me and look up to!! Your presence at conference was one of my highlights!! Keep inspiring!!
Mary, I have been on XELODA for almost a year. I was 61/2 years cancer free due to transplants, but it came back in my ureter. Treatment this time around was very hard with many life threating times, I basically flunked out of all standard chemo programs. My doctor and I discussed quality or quanity of life and decided to stop treatment. I did my scans 3 months later only to find out it had spread to stomach and pelvic. I then went on XELODA, I still had problems but more do stent in ureter and never had a constant chemo schedule. I developed hand/foot syndrome very badly (needed wheelchair) so we reduced dose and that helped. I finally just did 2 months consecutively of chemo and am taking a break due to more chemo symptons, but only a week! Doctor said if side effects continue, we can still lower dose. In conclusion after almost a year and minimal problems, there has been no mets and my year and half is now 21 months.
There is HOPE
BGlass, BJC my hospital and doctors have a portal but they won’t release scans until after you see doctor. I can see my blood works in about 15 minutes, but the rest is released after doctor sees you and I appreciate that, I would make a very word a negative!! LOL!!!
I too was diagnosed in 2008 and went 61/2 years cancer free and mine came back 2015. I was 52 when first diagnosed and was 61 when it came back, I do know chemo the second time was a lot harder on me than the first time, I basically flunked out of most chemo options because of all the complications they were causing so we stopped chemo for a few months only to have more mets happen. My doctor then decided to have me do Xeloda, and it has been almost a year on it and stayed “no change”, with little side effects.
Prayers for answers and HOPE,
Julie, GREAT news. I for the first time in 9 years of the CC world had my scans and results in the same day for the first time!! LOL!! So nice, no prolonging the anxiety!!
Keep inspiring and giving HOPE!!
Catherine, what a great doctor!! I have always posted about my HERO, Dr. Chapman and one of the things I always say is he is phone friendly, and will phone consult, will not have you make a trip if he doesn’t think he can help you!! Signs of great compassionate doctors.
Taylor, I am 9 years out in my CC fight. I was blessed to have been able to have a transplant. Transplants are very controversial still in the CC world, you really need a doctor who believes it is an option, the Mayo Clinic is one. I am in IL. and was cared for by the most amazing doctors at Barnes-Jewish in St. Louis MO. my hero is Dr. William Chapman. I have shared my story enough that several of our CC family from all over have contacted him and some have had the prognosis changed for the better. I know that one gentleman who was considered non transplant from Mayo Clinic, contacted him and Dr. Chapman was able to transplant him and is 3 years post transplant. ICC is usually not a transplant options, but things are so different now then 9 years ago. Dr. Chapman is one of the most kind, gifted doctor you will come across, he is vey knowledagble and respected in the CC world he is also very phone friendly and moves quickly because he knows time is not our friend.
Here is my story http://www.catherinedunnagan.com
Please let me know if I can help
Prayers for answers and comfort at this time
John, Keep inspiring! I was diagnosed 2008, and had 2 liver transplants and went 61/2 years cancer free! I now have been back in the fight for almost 2 years and when CC came back I was told 11/2 years?!! Thanks to great doctors, and power of prayers I am still here. I failed most of all the chemos and ended up back on Xeloda for the last year and that has kept me “no change”, still have several mets but nothing new for almost a year now!!
Here is my story http://www.catherinedunnagan.com
I grew up in Sunnyvale, CA and lived in Monterey before my Midwest move, so I loved seeing your hometown, spent many wonderful beach moments in Capitola and Santa Cruz!!
Prayers for continue success and keep giving HOPE!!
Val, sorry you had to find this website. I just want to tell you I am Dr. Chapman’s miracle. I am alive today because of God, 2 strangers, and Dr. Chapman and team. I have an amazing story to share and keep it posted at http://www.catherinedunnagan.com I am sorry to say though my story took a bad turn last October when my cancer returned after 61/2 years of being cancer free, but for me I remember 8 years ago I was told I had 6-8 months to live, so when I have my pity party I just remember that I got 8 years out of 6-8 months, lots of moments and memories made!
Dr. Chapman is more than a doctor, he is a kind man with a heart the size of Texas, he is very honest and loving. Dr. Chapman is very phone friendly and will move quick in reviewing your dad’s case, he know time is not our friend. Once you contact his office he will have you send records/scans and will make a decision if he can change your diagnosis or treatment before coming to St. Louis. He will not make you travel if he doesn’t think he can help you.
Please let me know if I can help, or if you come to St. Louis you have a friend here.
Brigitte,, I have a blood cot in my hepatic artery and have been giving my self Levonox shots since January. I tried to switch to Pradaxa, because my stomach was so battered and bruised from them, but had major heartburn from it. I googled Pradxa and found that is a major issue, so I am back to look for a spot to get my shot!! Oh well, I am alive to have such problems!!
Jennifer, I am excited to give you the name of my hero, Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO. I was 61/2 years cancer free thank to Dr. Chapman. I have an amazing story to share and keep it posted at http://www.catherinedunnagan.com There is a video on there that I was honored to make with Dr. Chapman. I have posted his name on this site for years and many CC patients have contacted him and several have had there diagnosed changed for the better. Dr. Chapman is a doctor with a heart and kind soul. He is very phone friendly and will act quickly, because he knows time is not our friend. You can also reach out to Daisy, or Brenda on the farm, to hear more amazing Dr. Chapman stories. I am alive today because of God, 2 strangers and Dr. Chapman and the amazing part is that is exactly he would list it, he is a very humble.
Please contact me if I can help more.
Prayers for your mom and your family.
Donna, Welcome the world to of CC! I to am so short of breath, I can’t walk to living room from bedroom with out be winded. Many chest CT, blood work. ER visits XRays and long story short it is my liver and CC. Before my CC came back I was very short of breath, I couldn’t walk and talk (God forbid!!) turns out I was very anemic and take 3 iron supplements a day, made big difference back then. My hemoglobin stays low about 9 now. I use a scooter, if I ever in a store where available, and that is very exhausting!!
Not sure I added any new information but I feel your pain and frustration!
grsharp, Welcome and sorry you had to find us. When I was first diagnosed my doctor’s exact words,” I know it will come back a false negative” It took 2 weeks of being sent to Mayo to get my positive biopsy. I have an amazing story I share on my web page http://www.catherinedunnagan.com
My hero is Dr. Chapman at Barnes_Jewish Hospital, St. Louis MO. Dr. Chapman is from Vanderbuilt and has a great reputation in the CC world. He is speaking at conference this week!!
Dr. Chapman has been contacted by several CC patients and some have had there prognosois changed for the better. Dr. Chapman is very phone friendly and will only bring you to St. Louis if he can help.
Please let me know if I can help
Lots of prayers-Cathy
Julie, I just had the same expierence with my liver abcess. My interventional radiologist, thought it was getting worse but my liver doctors didn’t agree!! After several conferences with all my doctors, they believe it is better because the ultrasound is a better scan for fluids than a CT. The ultrasound showed very little fluid and my drain should be removed in 2 weeks!!
Lots of prayers for healing and less confusion! Cathy
Julie, sorry about all your problems! Thank God for the internet! I am curious why they don’t use an external drain. I have had fluid build up for 6 weeks and have an external drain, hopefully will be removed tomorrow!
Prayers for answers and good news from the Mayo!