jayne

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  • November 3, 2016 at 2:43 pm in reply to: hallwang clinic #57273
    jayne
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    She will be there tomorrow for 3 weeks. There are several types of treatment unavailable on the NHS. I will find out the names tomorrow and let you know. Thanks lainy she is very strong she has 2 young kiddies so she said she’s willing to do anything. Hi Marion yes Rachel has spoken to prof Valle team and prof vogl, he thinks it’s a great idea. Prof vogl does work in this clinic sometimes.

    November 3, 2016 at 2:39 pm in reply to: hallwang clinic #57274
    jayne
    Member

    She will be there tomorrow for 3 weeks. There are several types of treatment unavailable on the NHS. I will find out the names tomorrow and let you know.

    October 13, 2014 at 7:50 pm in reply to: younger sister diagnosed with advanced cc #85006
    jayne
    Member

    Thank you for all of your lovely messages and advice.

    That’s great news Sandie! What treatment did you have?

    We have a meeting with Professor Valle on 21st of this month, we asked him for a second opinion. Thanks for letting us know about him everyone. He sounds really good. I will let you know what he says. Please pray for my sister!

    I ve been speaking to a great woman at cancer options http://www.canceroptions.co.uk and shes given us a lot of options we can look at.

    I will keep you all updated.

    Thanks again and all the best to everyone!!

    October 4, 2014 at 5:45 pm in reply to: treatment centre for inoperable cholangiocarcinoma #84989
    jayne
    Member

    Hi Gavin,

    Thank you for your support and your replies. Yes she mentioned it was because the cancer its wrapped around the arteries.

    All the tests and biopsy was done at Bradford Royal Infirmary. Im not sure of the name of the specialist as she has seen a lot of doctors.

    We have asked for a second opinion at Christies on Manchester.

    I have been looking at the new drug merck (keytruda) and we are looking at that. I have heard this has great results and is approved in USA.

    Yes we would definitely consider USA, I have been told the Mayo clinic is excellent. I have also heard a hospital in Germany is very good called Heidelberg, is this correct?

    We will do absolutely anything at this stage.

    Next appointment is Tuesday to discuss chemo at Bradford Royal Infirmary.

    How is your father?

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