jclegg
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Christina,
We are all thinking of you and Chuck. We all read these posts and hope to not see postings like this. Fight on – you are not alone in this, and advances ARE being made every day. You are in our thoughts and prayers.Look for rainbows,
Joyce
That is so disappointing – part of the “roller coaster ride” we all got for free when we joined these ranks, I suppose. I hope for a great new plan from your “gurus’. Sending good thoughts your way.
Joyce
Heather,
I am so happy for you and Lee. It is wonderful that he is responding so well to chemo. Butch and I are at UPMC – see the Doctor tomorrow about possible liver resection – we , also, as you know – were told by Mayo that Butch had weeks to months to live. Butch is doing fine. The first rounds of chemo brought his numbers down, and tomorrow we will be scanning that dreadful tumor. It is truly wonderful what the Lord can do, and I look forward to hearing more good news from you.Joyce
For both Alice and Charlene,
I have followed both of your posts, and am feeling so sad for both of you. I hope you can find comfort in shared feelings, and in knowing that we are all here for you. We are praying for you and your husbands.God Bless,
Joyce
Whoops – forgot to say I add those ingredients to the vanille boost plus! If you use the chocolate boost, you can add peanut butter to the mix – even more calories.
Patti,
My husband drinks Boost plus each day (350 calories), which was a suggestion from the oncologist. When he needs even more calories, I mix him a blender drink – bee pollen, whey protein, yogurt, sometimes sugarless ice cream, fruit – such as berries and half a banana. If I use blueberries, I use blueberry yogurt, etc. He likes them – for the most part – and – this helps “boost” the calories up.Joyce
Belle,
We are all standing bye, thinking of you and ready to help if we can. This must be so difficult for your family.Joyce
mroudebush,
Here is a summary of what I have learned from the people on this site so far: 2nd opinion, 3rd, opinion, 4th opinion if neccessary. Not only is each case different, Doctors have differing opinions on treatment options. Listen carefully to what the people on this site have to say – they have “been there, done that”. If we had not continued on with opinions, my Husband would not be going for a potential liver resection next week.
No experience with KC – but – blessings on your Mom – your parents are lucky to have you researching for them at this time.
Joyce
Lana,
Your Father must have been a wonderful person. I hope you will take comfort in the fact that there will be a special place for him in heaven. May God bless you and bring you comfort in your time of sorrow.
Joyce
Sophie,
I know how hard it is to wait – my Husband Butch has an appointment on the 30th of June at the University of Pittsburgh to (hopefully) have a liver resection – he if off chemo now, in anticipation of the surgery. We will pray for you, as will so many other of these wonderful people. After reaing these posts for many weeks, I feel we are all in this together, and that eases the burdon somewhat. It is true – the state of mind changes from hour to hour sometimes. We try to keep busy – I never understood what “living in the moment” meant before, but do now.Joyce
This whole darn CA 19-9 thing just confounds me – a pox on it! I guess we just have to accept that , like everything else that goes with CC, it is a little different for each individual depending on the circumstances. Hopefully, you will feel better after your Dad gets the results from the scans – it is the waiting that is the worst, so I’ve found.
Joyce
Hi Lilly,
What number is his CA 19-9 at? My husband Butch was diagnosed in March of this year. His CA 19-9 was UNBELIEVABLY high. It was much higher when we got to the Mayo Clinic, again here before starting chemo. After the 1st round of treatments (xeloda and Gemzar (gemcitabine), his CA 19-9 has more than halved – but – it is still 19000! Is this Gemox you mentioned Gemzar, because we were told that gemzar was supposed to lower that CA 19-9 number, and it did for Butch. I did an enormous amount of reading on this tumor marker, and there are reports of patients who had abnormal numbers for other reasons – some had a benign tumor (we know my husband’s tumor on his liver is malignant), some had a blockage in the bile ducts (people with primary schelrosing cholingitus are prone to this), and other reasons. What does his doctor say about this? How are the scans otherwise? We will all pray for you and your Dad, and we will all keep the faith.Joyce
gallatk,
I was so glad to read your post. My husband – Butch – was diagnosed in March of this year, and we went to the Mayo Clinic. They told him they could not do a liver resection, as the cancer had mets (here we go again!) to the abdomen, in addition to the liver tumor. Well, after we came home, I wrote the University of Pittsburgh, and Dr. Gamblin responded. After reviewing all the data – I sent him cd’s of all the tests, the medical record, etc., he is seeing us on the 30th for potential surgery the next week. We are very happy for this opportunity, and are hoping nothing has changed , so that he can perform the surgery. We are having a hard time waiting until the 30th, I can tell you, as he had to stop chemo for a month in order to go there. Because of the metatasis, Butch will be returning here and having , at least, chemo – maybe radiation also, don’t know yet. From all my reading, chemo after surgery seems to be a good idea – just in case. I don’t know, of course, all of the ramifications of that decision, but I know chemo has many unpleasant side effects, and there is much disagreement in the medical community about its effectiveness. I am so happy for you – that you were able to have the surgery, and wish you all the best. The wonderful people here will be available for you, I assure you, and help with the many questions that we “newbies” have!’
