jeanne031

Hi Colleen,
I have never written here before and I am so thankful that there is so much support on this site!! You have no idea how ecstatic I am to hear about your mother!!! My sister has had intrahepatic CC for three years and two months . . . she has been through, chemo, dentrite therapy, Y-90, ablations, and more. Can’t seem to get a hold on this. I have done a lot of research on Keytruda and it looks very promising. My sister tried two trials having to do with her mutation and they “cut her loose”, which was disappointing, but maybe it is allowing us to get into something more promising. . . Keytruda.

We are trying to get into a solid tumor trial of the Keytruda , but are willing to go “off-label” if allowed. I have a very important question(s) that might be able to guide us. Can you please find out if your mom is MSI positive (has Lynch syndrome) or is positive for PD-1? Should we contact your wonderful Dr.?

Thanks so much,
Jeanne,