jeffg
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Hi Lisa… I was on Oxaliplatin for a while and the effects, primarily for me were sensitivity to cold and heat with fingers and feet. I hope you handle the new treatment well. I had basically the same happen with my liver and lungs. I still have great O2 saturation.
Bless Ya,
Jeff G.Hello Swarty1,……. Sorrry to here of your situation. Dr. Nargorney was my surgeon, well it will be 10 years this coming March. They took my gallbladder and half of my liver. It has come back and mets everywhere after rounds and rounds of chemo and external radiation. I currently on at home hospice. So, I guess my situation was a little different, but a time time of demise depends on you, what type treatment you have had, actual location of tumor to start with and how you responded to treatments. If your Bile is kept flowing makes a difference of how long you have as well. A lot of variables. Keeping faith and hope is what works best for me. I actually believe I see a little juandice today. Feel free to use the custom goggle search at top of these post to review many specifics particular to this site and it’s members and what has been tried. Many individuals have well surpassed there original Dx of how long. Feel free to ask any questions, I’m sure other members with similiar DX will be willing to share their experiences. Anti-oxidants and high protien has always be good in my book.
God Bless,
Jeff G.Jim ,Sorry you are fighting this battle. I would recommend start with using the custom google search at the top of this page. This custom search is for this site dealing with what you are asking about. Others will also volunteer as they read your post. I wish you the best and don’t hesitate to ask any questions if something is unclear, we are here to asist. 2nd and 3rd opinions can usually bring about a different approach. Some surgeons are willing to do more than others,
Bless Ya,
Jeff G.Hi Sophie , I just figured out myself. You need to open a free blogger account once you get to site. where it has followers click and a window should pop up for you to do so. Just enter your own email address and a new password. Then you can make comments or start your own blog. You can go straight to http://www.blogger.com click on blogger and sign up a free account that way as well. Wish I could be of more help getting you on. Good Luck
Bless You, JeffHi All, I think I let all know in my blog, If not I was put on synthetic methadone(less side effects), 4 times daily with diluadid as a break through med. It works great as long as I’m not to active. With mets to the bones my pain constantly changes or is aggravated with movement and position. So , I’ve learned real quick to sit still or make slow easy movements. I do have room to increase Methadone, but I chose to move slow and at least be awake and enjoy my surroundings. I have had to cut back on size of meals and start following the more often but less, to allow digestion to properly take place. I also take magnesium citrate once weekly and miralax and senna daily, to help keep the bile flowing. One day at a time Sweet Jesus.
Bless all,
Jeff G.Hi Megen, Fluid retention/ascites can be drained. I had my lung cavity drained 3 times. First two times a full liter was removed each time. the third time just a quarter liter and now appears to have stopped. Yes retention can occur elsewhere stomach, legs, feet. If swellen is in feet or legs, I would try keeping feet up as much as possible above the level of the heart. A simple x-ray can tell if her fluid retention is getting worse. Restlessness can be anxiety. The doctor can prescribe lasix for fluid retention and some type of anti-anxiety medication for the restlessness. She is not juandice and some don’t get juandice. However what you have discribed, the discomfort can be reduced considerabally . She needs to advocate clearly with her doctor what she needs. If she is having high fever possible infection. Not knowing the the full story, I would recommend she be checked out as soon as possible.
God Bless Your Mom,
Jeff G. P.s. Has any one talked to the doctor about hospice program?Quan Yinprayer, It sounds as you and your brother and sister are taking real good care of your Mom. I’m sure she is proud of you all and is happy for the support. The chemo medication she is currently on can cause pain in the liver and shoulder area. Keep watch on her blood counts and if go to low,you need to have Mom hold back from treatment until doctor says okay. Staying calm and praying to Buddha and drinking green tea and plenty of fluids is all all good. Just follow -up with scans as scheduled and. Wish your Mom ,you and family only the best outcome possible.
Keep Praying to Buddha,
Jeff G.Hi Lainy and Mr. T.,
Knowing and being prepared is always so helpful. I hope the fog stays lifted with a clear path . I was going to tell you about my first and last golf outing, but will spare you the details. Lets just say, posied for a high powered impact to send that ball and my club goes in the ground and my my shoulders the opposite direction. Ha! would have been an Arnold Palmer shot, if only I had connected. Ha! Don’t forget the tee, it helps.
Bless you Guys!
Jeff G.Candy Z — glad to hear the news. Yes I have used and still using stool softener Senna during the day and miralax 1 capful each morning in 4-6 ounzes of water . I then take prilosex prior to each meal and decadron steroid to keep down inflamations. How long I can press on this way is to be determined. I would rather be cancer free like your brother. He has a future each and every day, just like the rest of us still battling. I have an angle, it’s a matter of which way things go, will determine how many beautiful days I can tack on.
Wish only the best and tell your brother to live -on! and enjoy the clean bill of heatlh. Although I know he can’t help but wonder.
God Bless,
Jeff G.Kris, My thoughts are with you guys and your battle ahead. To have a stent done on me, I’ll have to revoke hospice care at home. I been told I can reinstate immediately following. My Oconologist agreed to see me in a couple months but by the time I have a blockage who knows. Glad to see you out of the hospital and getting ready to give them what for. It don’t seem to matter what health system you roll under, someone or something keeps getting in the way of our choices.
God Bless,
Jeff G.click on family blog, click on my name to the left and then click on my name on the right. this should do it. Make sure logged in to main site before clicking family blog. Maybe Rick can take a peek and see what’s happening. He had to help me start blog to begin with.
Bless Ya,
Jeff G.Sue……… Your good news is like hope flowing freely through the air sprinkling cure dust on some of us and just maybe the next whirl wind will pick up some more and sprinkle again passing, along some more good news. Like I’ve always said hope is in the air and you just never Know.
Bless your sweet heart!
Jeff G.Hans, in the google custom search above, enter vena cava tumor and I think you will find what your looking for. liver, heart, and vascular surgeon all involeved, removing vien and replacing with synthetic material. Wish you both the best . Keep us posted and Kris’s spirits high— the battle has just begun and you should know Kris don’t give up easy. Relentless disease!!!! .
God Bless,
JeffG.devoncat wrote:This is actually not Kris
