jennej

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  • in reply to: Cholangiocarcinoma and PSC #39773
    jennej
    Member

    My husband received a liver transplant at Mayo (Jacksonville) on Feb. 24. I posted a thread with more details in the transplantation section.

    He’s doing fantastic so far!

    God bless,
    Jenny

    in reply to: Cholangiocarcinoma and PSC #39769
    jennej
    Member

    It’s been awhile since I’ve had time to come back and give an update. My husband Josh began going through Mayo Jacksonville’s liver transplant evaluation protocol on July 19. He underwent most of the testing with few complications, with the exception of a major GI bleed where his hemoglobin got down to 4. The doctors said an older man would have gone into cardiac arrest. He currently holds the record for the fastest blood loss in 2010 at Mayo Jacksonville. Not exactly the kind of record you want your husband to hold!

    The GI bleed was caused by an endoscopic sphincterotomy to insert bile duct stents during an ERCP. The good news is, despite the setback with the bleed, his bilirubin is down to 1.7 as of yesterday. And most of his liver numbers are close to normal. So the stents are definitely doing their job.

    Josh is currently undergoing chemo and radiation (he’s on day 10 of 20). On Labor Day weekend, he had another setback when he was diagnosed with a blood infection on Friday and had to be hospitalized all weekend to receive IV antibiotics. The blood infection was most likely caused by the stents allowing gut bacteria to get up into the bile ducts. (Stents: the very definition of a blessing and a curse!) The doctors said Josh was classified as having sepsis, which is just as scary as the GI bleed. But luckily he responded well to the antibiotics and was released from the hospital on Sept. 6.

    After he completes chemo and radiation, he is scheduled for an endoscopic ultrasound and another ERCP to replace the stents (I won’t lie

    in reply to: Cholangiocarcinoma and PSC #39767
    jennej
    Member

    I just wanted to thank everyone for your well wishes and encouraging words. We are driving to Jacksonville tomorrow so I will try to update sometime in the next week.

    Your positive thoughts and prayers mean a great deal to us. We are keeping all of you in our prayers too.

    Take care,
    Jenny

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