Jj950

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  • in reply to: Initial diagnosis and suggested treatment #98749
    Jj950
    Spectator

    Bglass – thanks for the response>  It was VERY helpful.  And, took a little edge off the anxiety of the increasing CA-19 numbers my brother has been receiving.  We all just need to be patient to see what the imaging shows.   My brother was diagnosed with stage IV right off the bate at 50 years old.  He is young, healthy, and his Oncologist DID say they were going to be very aggressive with the treatment (hence, Fulfirinox), which totally makes sense from what you explained above.   When first diagnosed his CA-19 was 5300.  After cycle ONE it was 6,500, after cycle TWO 9,400, and after his cycle THREE 9600  (only a 200 point rise this time).  Even though it rose again, we were all delighted to see it did not rise AS MUCH!  His oncologist did tell us not to get too hung up on these numbers and said exactly what you did about going by how you’re feeling, and  imaging.  His bloodwork as far as liver enzymes, kidney function, etc. has been excellent.  He is tolerating the Fulfirinox quite well!!  Fatigue and some neuropathy are his biggest issues.  We are all being optimistic and pray for a good scan on June 21st!  Thanks again for the input.

    in reply to: Initial diagnosis and suggested treatment #98747
    Jj950
    Spectator

    B-glass – you mentioned that Gem-cis is the work hoarse for this type of cancer.  I have a family member who is on Fulfirinox.  Do you know what the differences may be?  His CA-19s continue to rise – by the 1,000s…  : (    Yesterday was the first result where the increase was slight from what it has been in the past – it only rose 200 pts (after cycle 3).

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