jkalama
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Ashley,
Hi – just saw your post. My brother is being seen at UT HSC & he lives in S. A. He has had stents in for almost a year being treated with Prednazone (successfully at first but not now). Now they think it is likely CC, although he has had 11 brushings & ALL came back inconclusive. I live far (NJ) but feel like he is not getting all the info. he needs (or at least not reporting it back to me or my parents who are there with him). What has your experience been since your post? Are you still taking your mom to UTHSC?
Any info. of your experience can be helpful –
Thanks
JenniferThanks so much Lainy – I have alot of missing info. because my brother has not been giving alot of info. He seems to report that his drs just don’t know. He is being treated at UT Health Sciences Center in S.A. – just yesterday, though he saw the oncologiat at the Cencer Center (not sure the exact name but will find out). His oncologist said he has had a handful of other CC cases. Don’t know why surgery is not an option but think it has something to do with his growths (tumors) being in two different places in his biliary tracts. He has 2 stents in – last MRI one week ago, though showed a “spot’ on his liver. Until then his liver had always been very good. The PET scan 2 days ago apparently made the oncologist think CC was likely – again, not sure exactly why.
I think initially (a year ago) surgery was not an option due to the placement of his growths – too hidden or something?
What questions should I ask my brother?
also, he has NO health insurance – are there 2nd & 3rd opinions that would see him?It is just a bad situation all the way around with such uncertainty, no insurance and a patient (my brother) who is sticking his head in the sand & not really dealing well with any of it. Sorry to be so blunt – I love my brother v. much & just want to help in any way I can.
Thanks for the support here on the site
Jennifer
