Jo16met

Hi I may be writing prematurely here. I just started ivosidenib this month with no scan yet so I can’t tell you if it’s been a success   I hope your treatment is going alright for you!

I had a reaction after the first week where I broke out in hives from head to toe and waited a week to start up again first at half dose. Seems to be better this time. Dermatologist explained the hives happening  like I had had a shock to my system. Hope there’s no repeat…

My chemo treatment ran for 13 months before we switched. I’m interested that you did both at once. The biggest side effect is fatigue. Same as gemcis. I really don’t know what to expect but I remember being happy they found this mutation. It would be so great if I get some good results. My best to you!

JO