joann

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  • in reply to: Grieving and Thankful at the same time #26223
    joann
    Member

    Carol-
    My father died Feb. 8th after a year long battle with CC. I was able to help my parents by staying with them for the last 2 months of his life. I know the emotions you are feeling. And I want to tell you that they are real and a valuable part of the healing process. I watched my father go from a vibrant, healthy, go-getter to a frustrated, angry bed-ridden man. Frustrated and angry at a disease that we had little opportunity or know how to fight. He so wanted to live to be one of the first to try the Kanzius treatment. He wanted to live and fought with every thing he had to stay here.

    That said, when the pain and suffering get to be too much, it was easier to let him go. As painful as it was — and is–the time comes when letting him go was right. You and your family will know, just as we did. Being the caregiver is such a blessing and a curse. It makes all of the disease real and “in your face”–but, you know that you have provided all the love, care and support that you can–and that brings a great sense of peace.

    Take care of yourself too… and call on your family and friends to tend to all the other things that life asks of you. jk

    in reply to: New to the board #18994
    joann
    Member

    Thanks for the feedback. It helps!

    Barb- My father’s Dr. At UPMC is Dr. Gamblin–we were really pleased with his attentiveness and easy manner. He was great at taking time as we needed it to ask questions and ease concerns. The hospital was good too. Wonderful nursing care. It helps to have confidence in the people working on you!

    Thanks to all who post– it gives me lots of hope and good questions to ask as we move forward.
    JoAnn

    in reply to: My father’s journey so far with cc #18986
    joann
    Member

    Oscar-

    My father just left UPMC on Wednesday after having surgery. Dr. Gamblin was his surgeon and he was (and is) great. The nurses that cared for my dad could not have been better– very attentive and knowledgable.

    My dad is home after 8 days in the hosipital and will start chemo and radiation in a few weeks. As Iread these boards– I realize that I have alot to learn.

    I will keep your father in my thoughts. If you are going to UPMC and I can answer questions for you– let me know.

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