joelh77
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Hi Gavin,
Sorry I also meant to say we don’t have the services of a Macmillan nurse yet. Dad has a district nurse that visits every few days but really only address his bed sore that he is still recovering from after his extended stay in hospital.
Actually as a family we don’t feel the overall care is particularly “joined up” right now. The Royal Marsden were great but since he left and he is in the hands of the palliative care team it is hard to know who is actually in charge of everything. We are trying to sort this out at the present time.
Thanks again!
Joel
Hi all,
Sorry it’s been a while but life has been slightly all over the place of late. Thank you for all of your messages, and the link to the AMMF website – it’s all much appreciated.
Dad is now at home and still fighting but is now beginning to complain of pain rather than just discomfort in his abdomen. He is also beginning to not want to get out of bed some days (and perhaps sleep a little more). He is still doing his best to eat and drink, some days are better than others as you would expect.
Dad has also become more distant and is very quiet, sitting watching tv most of the time. When we visit (with his granddaughters 8 and 14) he usually manages to perk up for a few minutes but then resorts back to being quiet and almost on his own. As you can imagine this is unbelievably hard to experience for everyone concerned as we are desperate to make the most of our time with him.
It is so out of character for Dad who was always so full of life and conversation. I often wonder if this is down to the cc or if this is Dad’s way of dealing with the situation. I know everyone is different but have others witnessed a similar progression?
Thanks again for the support offered by the forum,
Joel
