jojo

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  • in reply to: Md Anderson and cancer center advice needed please #69200
    jojo
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    Hi Marion, yes she was set up as a new patient. Her original diagnosis came from mayo Rochester when she was doing liver transplant tests for her psc, they found cc. She had chemo in VT and infection led us to CCTA they fixed her infection and gave her y90. Reading here I told her she needed to go to a center where they r familiar w CC and she had MD lined up. The scheduler emailed us yesterday and said she was canceling because she is jaundice. We pleaded with her that she had stent change month ago and her number was going down weekly from 6.5 to 4.8 to 3.5 but she just said No. We have plane tickets booked and at least wanted an experienced CC dr’s opinion. She just kept saying , No. We r devasted and shocked how cold it was stated. Any advice please?

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