joniandjoe

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  • in reply to: CC Stability for Now #33675
    joniandjoe
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    My husband was just diagnosed in early September, but was told that the only option was chemo….(reading posts above, I have never heard of “whipple” surgery). So he has been on 2 different intrav meds two weeks on, 2 off, gemzar is one. They said it’s stage 4 but have never said what type of bile duct cancer it is. So here he is, 73 yrs old, never sick a day in his life…..he can barely walk with fatigue, lost all his muscle mass, and has been battling with the drainage implant which drains the ascites, but that was a huge mistake. Got infected, had to come out, but he’s still leaking….I’m so exhausted trying to work full time, (I’m 57) so I am taking 3 weeks family sick leave…..I still cry sometimes when I’m off by myself, but I’m staying strong for him. They told him 6 to 12 months prognosis. I still feel lost in space…..I’m sure ever other care giver, family member does as well….just trying to feed him, change his dressings, walk him around and make him smile……what else!>>>???

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