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Viewing 15 posts - 1 through 15 (of 34 total)
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  • in reply to: Question about hand and foot syndrome from Xeloda? #63625
    jtoro
    Member

    I used eucerin, udder cream.
    Jtoro

    in reply to: Questions about antidepressants #62964
    jtoro
    Member

    I have been on celexa (like lexapro) for about 5 years. It has been great. Take Xanax if I need to’ but very rare.
    Jtoro

    in reply to: Not the news we were hoping for. #62500
    jtoro
    Member

    Pam and Lauren,
    My prayers are with you.
    Fondly,
    Jtoro

    in reply to: organizing meals #61865
    jtoro
    Member

    Hello,
    My neighbors,friends,and church people are using the site mealtrain.com for our family for two years. My cousin set up the calendar on this website with everyone’s email. They can pick an open date and sign up. They bring a meal each Thursday night at 6:00. We put ideas of what foods we like and can eat in this site. When a month runs out, she adds a couple more. This has been so nice. Even if I’m not up to eating my family is hungry. If people don’t want to cook they get take out for us, but not fast food. They may get California Pzza Kitchen, etc… There is also a place for me to address them on this site. Most of the time it’s too much food and we eat some for leftovers.
    Jtoro

    in reply to: Just say Hi from ASCO 2012 #61702
    jtoro
    Member

    Thanks for your update. Looking forward to hearing everything you learned.
    God bless you.
    Jtoro

    in reply to: Susan Wise: April 1951 – May 2012 #61668
    jtoro
    Member

    My thoughts and prayers are with you. What a wonderful relationship you two sisters have had. Hang on to those wonderful memories.
    Jtoro

    in reply to: Avastin #60362
    jtoro
    Member

    Marion, he suggested I talk to Taline, his PA about what the rejection letter said. I don’t think Dr. Lenz has the time to handle these. I will talk with Taline on Monday, just wasn’t sure if there’s a specific way to appeal it.

    Yes, I do have pain, but am on a 25 Fentanyl patch and take 1-2 dilaudids each day for breakthrough pain. My main problem is trying to gain weight. I have started megase and hopefully that will help.

    Thank you,
    Jtoro

    in reply to: this may be an odd question… #59711
    jtoro
    Member

    I see my onc and PA every two weeks. I am examined by both of them.
    Jtoro

    in reply to: Starting new treatment soon #59638
    jtoro
    Member

    Tiffany,
    I was on xeloda for 19 months. Three pills in morning and three at night. The only trouble I had was feet peeling and numbness, but nothing I couldn’t handle.
    It got to be a little too much after a year, so he cut me down to 4 days instead of 7. I never got the mouth sores or any other side effects. I was on this with Gemzar for 19 months, then had to switch to 5fu/oxilaplatin which I’m on now.
    Best wishes to you on this new treatment. My prayers are with you.
    Jtoro

    in reply to: Any treatment that works? Please help #27476
    jtoro
    Member

    Dear capo dad,
    What exact supplements is your ex wife taking? I am also in orange county, but go to USC for treatment. I have never been able to have surgery and will be coming up on my two year diagnosis. I have been on chemo these last two years. Can you tell me exactly what she’s using. My problem is that I’ve lost so much weight these past months. I am on a patch for pain.
    Jtoro

    in reply to: Pain patch #58414
    jtoro
    Member

    Thank you to all of you. I will start thr patch tonight. I do get many anti nausea medications with chemo, but this the worst I’ve been. I get decadron, kytril, aloxi, emmend, and Ativan. I also have others for the days after. This was my fourth cycle of the new chemo, 5fu/oxiliplatin. I had a scan on Tuesday and liver and lung rumors are stable. Slight growth in peritenium , and dr. Lenz feels this is causing the pain. My markers ans cea all look good. We will comNtine on with this chemo. A little better today, but still very nauseous. This is difficult as I’m continuing to drop weight and have to put some back on. Thank you for your support and prayers.
    In Christ,
    Jtoro

    in reply to: Thoughts on chemo…. #56992
    jtoro
    Member

    I have been on chemo for 20 months and have only missed 1 because of low counts. There is no end to my chemo treatments. I hate when people ask, I just say there is no end I have to do this forever. I have been stable for 20 months, but the Gemzar /xeloda just stopped working and I had a little growth.
    He has put me on oxiliplatin with 5fu and had my second treatment yesterday. Hoping and praying this treatment works as well as the last. I can’t have surgery as it has spread to liver, lymph nodes, lungs, and peritoneal area. It was in all of these place at my original diagnosis.
    Jtoro

    in reply to: xeloda? #56985
    jtoro
    Member

    I was on xeloda and Gemzar for 20 months and it just stopped working. At the beginning I had the red and sore feet with peeling. My doctor kept the dose, but only had me take it 5 days instead of 7. That really helped me. This was my only problem with xeloda.
    Jtoro

    in reply to: 5fu/oxiliplatin #56438
    jtoro
    Member

    I started the fulfox two weeks ago with my second treatment being today. No nausea because of all my pain meds. A week after treatment got diarrhea and stopped vomiting also. It didn’t happen again after this one time.
    I am experiencing quite a bit of pain in abdominal area. Trying to keep it under control wil vocodin/500 with dilaudid 2mg. I have one more treatment and then a ct to see if the new treatment is working.
    The following week we will be taking a week long trip to kauai. It will be my husband, daughter(16), best friend and caretaker helper and mom. We are going to relax and have fun. Hopefully my pain has lessened by then. Our son can’t go, as he is in college back east and no break for him.
    Dr. And everyone hopeful new treatment will cause stability. Gemzar and xeloda gave me 20 months.
    Thanks for the support,
    Julie

    in reply to: SwiTcHing treatment #56229
    jtoro
    Member

    Percy- Thank you for your thoughts. I am a Christian. There is no way that I could have gotten through the last 20 months without God in my life. Everyone i know I ask them to pray for me. I believe this is why my treatment has been so successful. The Lord has been with me.

    I am taking the Vicodin 500, about 3-4 in 24 hours. I also have pain each morning in the middle area right below the breast bone. I will email Dr. Lenz tomorrow and continue to pray about what to do. He has me off the nexavar and xeloda. He is waiting for insurance approval for the 5fu/oxiliplatin. The pain is definitely getting worse and is not all relieved by the Vicodin. They gave me a prescription for dilaudid and fentanyl patch, but I haven’t tried either. I’m very nervous to try them.
    Thank you for your support,
    Jtoro

Viewing 15 posts - 1 through 15 (of 34 total)