jujubear

Hi marions. Thank you for the link, I will check them out after this post! I hope my mom is proud and happy. That’s all I want from her. I just hope that she does not think she is a burden on us, because she is not…
The fever has subsided and we were told that it is what patients with this cancer get. For the fluid buildup, we were told that she would have to stay for further testing to find out. But if she chose to do that, then she cannot do the chemotherapy. So, we decided to continue the chemotherapy and take the diuretic to see if that helped with the fluid. She was given antibiotic ( levithrol), and has been taking that every day since July 13th, also. The antibiotic was given to prevent her from infection in her stents. We have not done another ct scan after we started her chemotherapy. From the last mention of her getting one, they said after her cycle she will do one. I will ask to make sure though!
We were recommended to go this hospital from a family friend who is a doctor. She wanted us to see the head doctor/ surgeon of liver transplant, and he then referred us to the head GI doctor( for ERCP) and head GI oncologist. Sometimes I feel overwhelmed going to the oncologist. I am not one of those ppl who know what to ask, and my mother is the same way. So sometimes, I feel like if we don’t ask something, we just won’t be told anything…. And the treatment center, it’s not family friendly. There was an incident I had with a male RN, because he did not want to let my dad sit on a chair…
I will ask my mother if she will like to get a 2nd opinion from another hospital. I just don’t want her to feel weak, or feel that we do not trust the doctors. That is what the doctors in Korea said to her. To not think of anything, but to trust her doctor who is giving the treatment.
It’s hard to see my mom like this because she was always active and never wanted to stay home. Now, her life is just at home. This past Sunday, her friends from church came by to chat and to pray. I know that she had a great time, and I’m so happy they came!