jules1982

Hi Jason,

Thank you very much for your reply and the links. This looks promising to me and I’ll let you know if I find anything further. It brings some comfort to know that there are others in the same situation and we can share knowledge in beating CC. Do let me know how your wife gets on with her treatment.

Best wishes to you and your wife,

Jules

Thank you for your reply Marion. I will indeed stay hopeful and am grateful for the vast amount of knowledge on this site.

Hello,

Thank you so much for your replies. Unfortunately there is no treatment plan as yet. My mum has her biopsy to confirm the diagnosis this Friday, though the liver specialist says that he is certain. Then hopefully we will know what can be done. They have already told us that it is unoperable, which has scared us half to death, given the statistics that I have read.

We have so many regrets as my mum has had a “twinge” in her liver area for probably about five years, but ignored it as it was so slight. We wish she had gone to the doctor sooner, and the situation may be very different. The vibe I get from the medical teams is extremely negative but we are a strong family and we will fight this with everything we have.

I feel very confused about how my mum could have had this for so long, when it is supposed to be an aggressive tumour. So much just doesn’t make sense at the moment.

Jules

Hi Gavin,

Thank you for your reply and best wishes. I am sorry too, to hear about your dad. My mum’s biopsy is being done in Newcastle, and I am based down in Oxford. We’ve had a long journey with all of this as my mum was initially told by the Gastro Consultant that he was “over 90% sure” that the mass was benign. In fact, the radiologist would not do the biopsy as they believed that the mass was a hemangioma, and the risk of bleeding was too high. However, mum’s scans were then sent to the liver Consultant, who trained at Mayo, and said that it is CC. With his level of experience, we have no reason to doubt him sadly, but we are living in hope until the biopsy results.

Mum had a brief period of jaundice several months ago, at a time when she was taking a lot of medication for a tooth infection. However, the jaundice then disappeared. Her main symptoms are nausea, a sensation of “pressure” and sometimes a brief stabbing pain around her liver area, and slight fatigue. However, these symptoms come and go, and seem to be better of late, now that she is eating a healthier diet. I understand that jaundice is not so common in Intrahepatic CC?

It’s all just so confusing and we’re tired of the Consultants chopping and changing their minds. Whatever happens, we plan to get a second opinion. Our GP has already told us that the tumour would be inoperable, but we are fighters and we will not give up!

Best wishes,
Jules