juliedb
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Hi Cindy,
2 English newcomers on the same day!
So pleased to hear that your Dr caught your CC early. We weren’t so lucky and my hubby was fobbed off with ‘anti-acid’ and ‘stomach lining’ tablets for several months and we only got a diagnosis after he insisted on paying privately for a scan!!
Have a look at the Penny Brohn Cancer Centre website. They firmly believe in the power of your own immune system and their courses give you all sorts of ideas to help boost it.
Julie
Morning all,
I can’t tell you how wonderful it was to log on this morning and see all your messages. Thank you all.
We live in Somerset and Hubby was diagnosed initially with secondary liver cancer at Weston super Mare General Hospital in consultation with the MDT at Bristol Royal Infirmary (BRI). We got a second opinion from Prof Cunningham at the Royal Marsden in Chelsea. It was he who advised it was primary intra-hepatic CC and recommended GemCis. We had one cycle of ECX before we had heard from Prof Cunningham and we then switched to GemCis for 2 cycles.
He had the chemo in Weston on the NHS. (We do have private medical insurance and so we checked that we weren’t in any ‘postcode lottery’ with what we were being offered and have been assured that we we aren’t.)
When Weston General said there was no more treatment they could offer as there weren’t any alterntives to GemCis. We again asked Prof Cunningham for a 2nd opinion and he agreed with them – also advising that there were no trials. Our Dr also requested Phase 1 trials from a colleague in Oxford.
Hubby isn’t jaundiced so he doesn’t need a stent. If he becomes jaundiced they will give him a scan to see if a stent would help.
PDT hasn’t been mentioned. Don’t know why – I’ll be picking up the phone later to ask…… I will also ask about BILCAP. Also the Helixor shot sounds interesting – and will do some research on this.
One thing I would like to mention is that we have had great support from the Penny Brohn Cancer Centre in Bristol who approach cancer holistically and they give great advice on nutrition, relaxation and generally ‘living well’. They have residential courses and encourage supporters to attend too – as they really appreciate that the battle is a joint one. I know I see this as ‘our cancer’ as I am sure those reading this website also do. Penny Brohn Cancer Centre is a charity so they ask for donations if you attend any of the courses etc. – so it is accessible to all whatever your financial status.
We have recently seen a Dr of Chinese medicine and hubby has been given some herbal medicine (to light his inner fire – I’m still waiting!!!) and acupunture.
Once again thank you all – although it is sad that we have all joined this family – it is wonderful to know you are all out there. Hoping those that you are waiting for news get a positive result. I’ll let you know how we get on.
Julie
