Jwhite3141

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  • in reply to: Unfortunately, another introduction. #98336
    Jwhite3141
    Participant

    Latest PET scan shows that although the tumors have not spread outside the liver, the tumors that shrunk with four months on the GEM/CIS chemo have regrown to original size.

    I’m on a 4-week chemo break right now and am feeling well.  Still just very tired.

    I had the Y-90 procedure (radioembolization) last week and other than a couple of days of nausea, I’m feeling ok.

    Coming up on 5 months since being diagnosed. Hard to think about how few months I may have left with my family.

     

    in reply to: Unfortunately, another introduction. #97916
    Jwhite3141
    Participant

    I see the Dr every week except for one week out of three when I do not have chemo. I check the patient portal but test results are not always available there prior to seeing the Dr.  I hate waiting as well but it gives me something to do at this point.

     

    PET scan results were good. The chemo is working. Tumor appeared smaller, no new tumors, and much less uptake of the glucose dye.

    CA-19-9 is still in the 30’s at 39 and liver function tests all appeared within or very close to normal ranges.

    Going to investigate directed therapies next.

    in reply to: Unfortunately, another introduction. #97904
    Jwhite3141
    Participant

    4 doses of chemo down. 5th one scheduled for tomorrow. CA-19-9 marker results so far: 87-91-92-31.  still waiting on the results from the last test 2 weeks ago but hoping this is a trend. PET scan results from 2 weeks ago due tomorrow as well. Fingers crossed.

     

    Merry Christmas,

    Jonathan

    in reply to: Unfortunately, another introduction. #97801
    Jwhite3141
    Participant

    Thank you all for your comforting words. They really do help. And you are all right, the internet is full of doom and gloom stories. Your experiences are so much more uplifting.

    Thank you so much.

    Jonathan

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