kathyd

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  • in reply to: In the middle of this nightmare and seeking info……. #68523
    kathyd
    Member

    Yes, I am being treated at Froedtert Medical college/hospital. good people. Any hints on the “pins in the fingers” ? It is awful and this is my first treatment. Gloves actually don’t help….I tried leather..no go…..even the countertops hurt.Thank you everyone!! p.s. made some oatmeal this am….went down great.

    in reply to: In the middle of this nightmare and seeking info……. #68521
    kathyd
    Member

    Good morning everyone. Can’t thank you enough for responding with your personal stories with this awful disease.
    Just had first dose of Oxaliplatin and at home 5FU for 48 hours. Wow……never thought the cold would be this painful and much of the time I am using a glass that is at room temperature. My fingers and throat tell me if it is not at least a bit warm. Cottage cheese this morning warmed did not go down so well :)
    Had to find something funny about now.
    Everyone has been so hopeful and so was I, but I am a little shakey right now. Hope this blows over….I am so weepy…and I think so shocked. It seems it is almost like playing Wack-A- Mole. They might get the tumors to shrink one place only to have them pop up in another. My oncologist refused from the start to give a stage to my case….said he does not agree with doing that altho I am sure it is in my records. My stage must be 5,6,7 ?? Maybe I don’t want to know every detail. He never gives survival months and said we will just keep plugging along until we find the right mix, changing as often as we need to.
    Should I keep posting in this area, or move to another area of the discussion board?
    God bless you all………

    in reply to: In the middle of this nightmare and seeking info……. #68518
    kathyd
    Member

    Outside the liver I believe. I should have the dr. draw me a picture again but the tumor shut down the duct so I had to have the stent put in. Last picture I saw, I believe it was outside of the liver. But all is so close..

    kathyd
    Member

    Thirdone,
    I noticed you put your Dad had CC 15 years ago. How was he treated then that he was able to keep it away for so long?

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