katieloumatt

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Viewing 15 posts - 241 through 255 (of 259 total)
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  • in reply to: Happy Birthday, Dad! #31655
    katieloumatt
    Member

    Stan,

    What a lovely lovely message. I am sat here in tears whist reading it.

    He was truly a loved Dad,

    We had my Dad’s birthday in August of this year just 5 short weeks after he passed away and instead of giving him a card and gift we went to the funeral home to pick up his ashes to bring him home to my MUm. That was truly the hardest thing I have ever done, but my husband was a fantastic support.

    Thinking of you all,

    Katie

    in reply to: Need some mental help and lots of prayers! #31594
    katieloumatt
    Member

    Pam,

    Thinking of you and your family as you begin this painful task,

    Katie

    in reply to: is there anythink I can do #31610
    katieloumatt
    Member

    Hi Dt,

    I see from your location that you are in the North West. Why don’t you ask if your Mum’s doctor could refer your Mum for a second opinion to Leeds where there is a fine liver unit. Or how about to Christie hopsital in Manchester, which again isn’t far for you to travel.

    As previous posters on this board have said because this cancer is so very rare a second opinion may well be helpful .

    Thinking of you

    Katie

    in reply to: Need some mental help and lots of prayers! #31587
    katieloumatt
    Member

    Pam,

    I can so identify with you on this. My Dad passed away 3 months ago, my Mum lives in Florida and I live in England. Before we left (5 weeks) after Dad died I helped her ‘sort out’ Dad’s clothes but that is as far as we got…

    Once I had come home she did some more sorting out with a close friend but couldn’t bear to dispose of his clothes. My Dad had 95 shirts…. No kidding, and they were all variations on a same theme. She has now donated all but 2 or 3 to the local charity shop, she was going to offer them to Dad’s friends but couldn’t run the risk of seeing someone else in her beloved husband’s clothes…

    All that is left are some personal possessions and when my brother goes over in a couple of weeks he will help my Mum sort those out.

    It all seems so final doesn’t it? But your memories and thoughts of your Mum are deep inside your heart and mind.

    Will be thinking of you this weekend,

    Katie

    in reply to: new member #31585
    katieloumatt
    Member

    Hi Florida Mum,

    Welcome to the board and all the loving, knowledgeable and supportive people who post on here.

    I absolutely agree that there is only one person who knows our fate…

    This disease has a mind of its own, but you can fight it!!

    Wishing you strength and courage in your fight,

    Katie

    in reply to: high bilirubin #31543
    katieloumatt
    Member

    Hi Elmoks,

    I can totally empathise with your desire to be kept in the picture regarding your Mum’s health but then part of you also not wanting to know the answers…

    All I can say is when you are informed and aware then there is a certain amount of control which may give you some comfort at this difficult time.

    We lost my Dad after a very quick progression 12 weeks ago, he had surgery but that didn’t go as expected. My Mum and I were shocked and distressed and consequently when the doctors rounded to see my Dad we would literally ‘run away’ becasue we didn’t want to hear the painful realisation that he wasn’t going to make it.

    I am also a nurse but at the time I didn’t have my ‘professional head’ on, I was just a worried, anxious daughter.

    3months down the road I am struggling because I don’t feel we were fully informed and I have such a lot of questions I need answers to. I know it is my own fault, the doctors offered to answer any questions we had at the time but we couldn’t think straight. I am now left unable to move on with my grief because I still haven’t fully come to terms with what happened to my Dad…

    My advise to you is ask all the questions you need answers to, call the doctors, maybe see if you could see the doctor tomorrow or Wed?

    As regards the websites I think there are links to useful websites, research etc at the top of the page.

    Good Luck, thinking of you and your MUm

    Katie

    in reply to: My brother is so very sick #31515
    katieloumatt
    Member

    Sandy,

    I’m so very sorry for your devastating news yesterday. Thinking of you and your brother at this difficult time,

    Katie

    in reply to: Hi, I’m a new member #29029
    katieloumatt
    Member

    Hi Onlygirl and welcome to this friendly, supportive ‘club’. I have only been posting on here about a month but everyone is so nice and responnds truthfully and honestly with their experiences.

    I hope you and your family get the guidance and advice you need fron the doctors,

    Katie

    in reply to: Sorry I haven’t written in a while #25814
    katieloumatt
    Member

    David,

    My thoughts and prayers are with you as you await results etc,

    Katie

    in reply to: A hard fought battle #31489
    katieloumatt
    Member

    Hi, can I just add how very sorry I am to hear of your loss of your beloved Mum.

    I know a little of how you are feeling, we have just lost my Dad 11 weeks ago, just 7 weeks after diagnosis of cc. He had surgery to resect his liver but sadly the cancer had spread and he never regained consciousness and died 9 days post surgery in ICU. Like your Mum he suffered total organ failure due to the surgery and the fact he was left with so little functioning liver….

    As Lainy and Kris have already said your Mum is with you in evertyhing you do. You will meet again and then there will be no more pain or tears.

    Peace to you and your family at this most painful time,

    Katie

    in reply to: Another rough day… #31419
    katieloumatt
    Member

    Sandy,

    Thinking of you and your brother at this difficult time, stay strong….

    Katie

    in reply to: My lovely sister #31015
    katieloumatt
    Member

    Julia,

    Sending you my thoughts and prayers at this most difficult time for you and your darling sister.

    I live in Manchester, my parents live in Florida and in May this year my beloved Dad was diagnoses with cc, he had a 2 stage operation. The first was where the docs placed a stent into his bile duct then portal vein embolisation the following day where the blood supply to one side of the liver is killed off in an attempt for the ‘good’ side of the liver to re-generate. Dad then went back to theatre 5 weeks later for the liver resection.

    He was in theatre an agonising 10hrs and when the doctor came to tell us the news we had dreaded…. The cancer had spread, 1/2 of his liver had been removed and what was left still had cancer in it… My beloved Dad didn’t stand a chance and passed away 9 days later without ever regaining consciousness.

    My concern is that why the doctor proceeded with such radical surgery when the outcome was going to be so bleak for my Dad?

    Your sister’s surgeon obviously realised the limitations of surgery on your sister and now maybe a different mode of treatment will be offered to her.

    Just to let you know I know exactly how helpless and anxious you are feeling. Please stay strong and look after yourself, it’s difficult I know, but your sister needs you to lean on, and you in turn need someone for you to lean on….

    Katie

    in reply to: Julia Parrett #31341
    katieloumatt
    Member

    Amy,

    Sending you hugs and prayers at this most difficult time. I lost my Dad just 11 weeks ago, barely 7 weeks after diagnosis of the horrendous disease.

    Gain strength from your family, lean on them as much as you need. You will see your Mum again and then there will be no more tears and no more pain.

    Katie

    in reply to: Need prayers for my Dad #31130
    katieloumatt
    Member

    Michelle, thinking of your Dad and hoping things work out with the lung biopsy. Stay strong to support your beloved Dad.

    Katie

    in reply to: New member, stage IV and holding! #31208
    katieloumatt
    Member

    Hi Cody,

    Welcome to the board from someone who has lurked for a while and joined a month ago….

    I am writing as the daughter of my wonderful Dad who sadly passed away 7 weeks after diagnosis of this cruel disease in June this year.

    From what I have read and what has been written in reply to my posts everyone on here is so kind, caring and most importantly knowledgeable.

    Wishing you strength in your journey and for you to have time to enjoy the renewed energy brought from your new therapy.

    Thinking of you,

    Katie

Viewing 15 posts - 241 through 255 (of 259 total)