kayh

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  • in reply to: Update #92092
    kayh
    Member

    Thanks both .
    Lainy – he had the colectomy a few weeks ago as an emergency op when they discovered the bowel cancer.
    I thought this weak was relatively calm but on Tuesday the biliary stent that they put in in October moved and popped out the other end which was something we really weren’t expecting. The bilirubin levels are OK at the moment so no need to do anything as an emergency and we now have an appointment on Tues to find out what the plan is with the bowel oncologist.
    We are doing OK all things considered but could do with a breather now!!

    Kay

    in reply to: Update #92089
    kayh
    Member

    Thought I would just give an update on the week’s events. So this week we met the colorectal surgeon and then the Upper GI oncologist who has been treating my husband since the beginning of Nov when he was diagnosed with cholangiocarcinoma. They have compared the biopsies from the bile duct and 2 areas of the bowel from the hepatic flexure and the sigmoid colon. They think that given the exceptional response of the tumour in the bile duct to the GemCis chemo and the growth of the cancer in the colon at the same time, that we are dealing with two primary advanced cancers. The oncologist says that the bile duct cancer has now been overtaken for the moment by the bowel cancer in terms of priority and so we are now waiting for an appointment with a colorectal oncologist to see what the outlook and treatment plan is from here on in…When the cholangiocarcinoma rears its head again the two oncologists will put their heads together and advise. It’s been an incredible few weeks for all the wrong reasons and of course now we’re back to square one wondering whether the outlook will be weeks, months or more.

    Kay

    in reply to: Introduction #91779
    kayh
    Member

    Thanks very much All – yes Lainy a sense of humour definitely helps- chemo is now referred to as Kemosabe (a la Lone Ranger) in this house). I’d always imagined it was it was a word for friend but have since discovered the actual meaning is ‘who knows’!! That’s about right!!!
    Kay

    in reply to: Introduction #91774
    kayh
    Member

    Thanks Lainy. When we got the diagnosis they said as all the lymph nodes were affected (including even the one up under his collar bone which they sampled with a needle biopsy) that it was inoperable. He’s at the start of cycle 6 today so I hope it will continue to blast away!

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