kiwi

Hi I have decided to share my experience as a new member from New Zealand. My husband ( 48 ) has CC. with initial symptoms presenting as slight abdominal pain in early May. After a visit to our GP and suggestions of gallstones a ultrasound showed liver lesions. He had a CT scan and also a colonoscopy to establish a diagnosis of primary liver lesions. A week delay to see the liver specialist led to a sudden onset of Jaundice , nausea and weightloss. We saw the specialist late one night and my husband was admitted the next day, an external stent was initially put in , then when infections had been contolled a double internal stent was successfully implanted. He had a nightmare stay in hospital for 30 days . No biopsy was taken as it was deemed unecessary and we were referred to the pallitive care team . Our specialist said no go to surgery because of the position of the primary tumour .The onocologist said treatment would add weeks onto his life expectancy. My husband saw his father die of lung cancer and throughout this we have made it clear that it is his choice which path he follows, he has so far decided that chemo is not for him and I respect his wishes and will continue to care for him at home . I read the experiences of people in other countries and wonder if we too had been in the states ,would the outcome of our battle been different. I don’t know how long we will have to continue with this struggle but I know Grant made the best choice for him given the limited options available in New Zealand . He is too much of a lover of life to want a half life in hospitals.