kristenkirtley

I’ve been in your situation being at 23 the sole caregiver to my mother in the same situation as you they opened her and saw how it was and closed her right back up. She did extremely well with a very positive attitude and told everyone she would fight till her last breath which she did. We just lost her on 7/7/08, 13 months after her diagnosis. The disease works in every case differently and how much of a will the person has. At the end we were told she was alive on pure will alone. She went from being “healthy” (as healthy as you can be with this disease) to just weak. A lot has to do with getting doctors who care. When she came here to FL after recieving initial treatment at sloan kettering there was a big difference her doctors wrote her off and she took that attitude thats when things went downhill. Find a doctor who cares about your mothers outcome that is half the battle, the other half is making sure she keeps a positive attitude and the people around her. Dwelling on the statistics and what not won’t help you or her it will drive you nuts if you do. In the end i cared for her the best i could, I was her 24 hour nurse and I don’t have a degree in nursing. You just give her all the love in the world and don’t get frustrated, it takes a toll on you but stay strong for her. In our home we survive on thinking the most positive we can, and till the end we assured her no matter what she would be ok whether it here or somewhere else