krmorton

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  • April 6, 2015 at 3:08 pm in reply to: CA 19-9? #87579
    krmorton
    Spectator

    Thanks everyone. Perhaps when I start treatment, the number will prove more predictive. My mind can try to take in that a super high number may not necessarily be indicative of something/anything but I’ll sure feel better when I can understand what the number means for me (if/when that happens).

    Many thanks to all!
    Karen

    April 5, 2015 at 11:13 pm in reply to: CA 19-9? #87572
    krmorton
    Spectator

    Thanks Sherri. I think the thing that freaks me out about the numbers is that the top of the “normal” range is less than 100 somewhere. It’s kinda hard not to get stuck on numbers when they are so extraordinarily high.

    Thanks for chiming in….that’s one of the things that I appreciate about this forum. It gives us a chance to truly see that we are not alone. :)

    April 5, 2015 at 1:44 pm in reply to: Hi there #87544
    krmorton
    Spectator

    Aana, I’ve just made my first post to this group yesterday, but when you mentioned the pain your mom has been in, I wanted to speak up. The reason I found my CC was that I was having very acute pain in my right upper abdomen that was being caused by a 7cm mass on my liver. The pain was so bad that I couldn’t stand up straight or take a deep breath. I was hospitalized for a few days while they worked on getting a pain management plan in place that actually worked. But, they did find something and it has been amazing to feel so good after feeling so bad. I take a morning and evening dose of Oxycontin and 3 doses daily of Gabapentin. That combination has worked well for me and your mom’s docs (I actually saw a doc from the pain management team) should be able to find a combination that can help her too. Just keep pushing and stay at it….there *is* a way to help your mom’s pain! Hang in there!

    April 4, 2015 at 7:26 pm in reply to: Hello to all #87548
    krmorton
    Spectator
    DukeNukem wrote:
    You have to be aggressive and find an aggressive onc. You have to be your own advocate and never give up. Something I’ve found with doctors – when I start getting aggressive and push them, they sometimes don’t realize that I am fighting for my life.

    Hang in there – there is hope beyond the standard 2 year prognosis, but only if you take control.

    Duke

    Thanks Duke. I know I’m still dealing with the shock of all this, but aggressive is my plan. And my hope is to find an oncologist who can match or exceed my aggressive desires and support/lead me through the journey ahead. It is certainly a fight for my life and I want to enlist as many people to join the battle with me as I possibly can.

    My career entails finding/fixing tough problems (albeit those problems are related to large corporate database applications) and I am used to taking charge and working through problems. I feel out of my element at the moment, but I plan to apply the same confidence and force of will to the fight against this disease as I do in my work endeavors. It may take a bit of time to gather and assimilate all this new info, but being aggressive, putting up a fight and grabbing the bull by the horns is the only way I know.

    I saw the new Disney Cinderella movie with my 8 yo daughter the day before this all began and I keep repeating the phrase from the movie “courage and kindness” over and over in my head. Overarching everything, I want to hold fast to my courage and kindness along the way.

    Thanks again!

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