kwilliams

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  • in reply to: Introduction #13645
    kwilliams
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    Hi everyone, my name is Kellee and my mom, 65, was diagnosed last fall with Cholangio. we don’t think it has spread beyond the ducts yet but as they say they don’t know for sure.
    Anyway I wanted to share information about a treatment that my mom will be receiving in the next few weeks…PDT. Photo Dynamic Therapy. She will be injected with Photfrin (sp?) a substance that collects in cancerous cells and makes them light sensitive. She will then go in for an ERCP and our doctor (Paul Yeaton at the University of VA medical center) will put a special light down and turn it on. The cells that absorbed the photofrin will die. The only gets rid of the cells the light touches but it is a life extending treatment that isn’t painful and doesn’t have too many side effects as with Chemo and radiation.

    The mayo clinic in MN offers this treatment as well, I think. Feel free to email or post with questions.

    By the way–great website! Please let me know if there is anything I can do help out and make it even better.

    Kellee

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