ladydi

My husband was diagnosed 7/1/13 with Stage 3 cholangiocarcinoma of right lobe of the liver and right bile duct and right common bile duct. It is inoperable because of its size (5x5x6cm).
Charlie has now been off chemo since 7/25/14 after being on it for a year, having Cisplatin and Gemcitabine one week, then Gemcitabine the next week and off one week.
He had a CT scan on 11/20/14 so they could see how the tumor is doing. We found out it has not grown at all, very good for being off chemo so long. It has never shrunk at all from the chemo. So his oncologist is keeping him off for another 8 weeks. His latest test for the cancer ag (Antigen) 19-9 testing tumor markers, which was done 12/29/14 shows his level at 312. When he was still on chemo, it got down (from 2806 in June 2013 to 88 on 9/18/14, then up to 145 on 10/28/14. So it hasn’t gone up a whole lot for being off chemo so long. The doctor said all his tests look pretty good. The CT scan did show some enlargement of the liver and spleen but upon physical exam, he could not feel it enlarged so it must not be that bad. His doctor told him that 85% of those with his cancer die within 1 year and the rest don’t make it past 2 years. He is now at 1.5 years and his doctor said he just MAY be on of the rare one who beats the odds and could last another couple years! Keep praying that’s the case.
He is gaining weight slowly, now up to 155. He feels good and has energy to do things so right now all is good.