Forum Replies Created
April 15, 2017 at 7:38 pm in reply to: Allergy to Adhesives…..in need of bandaging idea for port #94649
OOPS! I should have stated that my post came from Live Strong!April 14, 2017 at 2:47 pm in reply to: Allergy to Adhesives…..in need of bandaging idea for port #94644
Marion, I could not find anything on our site but did some other searching and found this:
The most important treatment for an allergic or irritant contact reaction to a medical adhesive is to remove the bandage or tape. Gently cleansing the area with mild soap and water is necessary to remove any residual adhesive. If possible, it’s best to leave the area uncovered so it can heal. If a bandage is necessary, covering the area with sterile gauze and applying tape to the gauze rather than the skin prevents further irritation. For a true allergic reaction, over-the-counter antihistamines and corticosteroid creams may be recommended. If the skin is blistering or the redness is spreading, it’s important to see a medical professional for treatment advice.
Not sure how you keep the gauze on without taping it!?!?!?
There are many types of medical adhesives, so one brand might irritate your skin while another will not. Paper and cloth tapes are less likely to irritate the skin than plastic tapes or bandages.
Dear John, You are a true Miracle and it is an honor to meet a warrior like you! Yes, you are blessed and we are excited to have you join our CC family and wishing you the very best on this, your 5th chemo journey! Wishing you success on this latest fight!
Dear Sheila, Welcome to our remarkable family and the best place to be for CC support. We know when you hear the word Cholangiocarcinoma it is a whole lot to take in at one time. Knowledge is the most important tool to fight CC. When you have a chance, read some of our Members posts or if you have a question you can use our Search Engine at the top of the page. Type in a word or 2 and many posts will appear on that subject. If you type in fOLFOX QUITE A FEW POSTS WILL APPEAR TO HELP.
Make sure that the Oncologist you choose and the Hospital for treatment, are very experienced with CC. Don’t be shy about getting 2, even 3 or 4 opinions. This is a very rare Cancer and no Doctor will mind you wanting more opinions. Keep a folder of all test and LAB results.
Here is a site you may find helpful: http://cholangiocarcinoma.org/newly-dx/
Please do keep us updated on your progress as we truly care.
Dear Fay, I am so sorry to read about all the pain your Mom is having. The only pain Med that worked for my husband was Morphine. Can you have her see a Pain Doctor? Once my husbands insurance turned down a PET and I found out that there were Imaging Companies here that would do a PET without Insurance for about 1500.00. Was ready to do that when the Insurance did come through after the ONC fought for us. Wishing your Mom the very best and hope they can settle this pain down!
Dear RobertAnna, Please accept my humble condolences on the loss of your Father.
As I sit in heaven and I watch you everyday,
I try to let you know with signs, I never went away.
I hear you when you’re laughing and watch you as you sleep.
I even place my arms around you, to calm you when you weep.
I see you wish the days away begging to have me home,
I try to send you signs to show you, you’re really not alone.
Heaven is truly beautiful, just you wait and see.
Live your life, laugh again, enjoy yourself, be free.
Then I know with every breath you take you will be taking one for me.
Dear Kris, you are the little engine that could and you will climb that hill and I am wishing for everything to turn out good. I sure don’t know how you keep track of it all! Hang in and hang on. Sure wish you loved closer so I could help. At least pick up some egg rolls!!! lol
Julie, YES, YES, YES, YES, YES, YES, YES, Yes What else can I say? Our Miracle called Julie!!!!!
Dear Charles. You know our favorite word is surgery and I am happy your ONC Surgeon is being wonderfully aggressive and innovative! Wishing you the very best and a successful resection. Cyber Knife will be a breeze.
Dearest Joe, YOU GOT IT! Absolutely walk away but not until you find a new ONC. Joe, we had a very bright and wonderful Moderator on this site named Percy. He was a Pharmacist at a BIG hospital in Chicago which I believe was Northwestern. My feeling was if Percy as a Moderator and Pharmacist thought it was the best perhaps it would be a good place to look in to for Mom. I am thinking Gavin or Marion can help on this, I hope.
One more thing is to listen to your gut it will mostly often steer you right. If I was treated like you have been treated I would be right out the door. Gather together as much of Mom’s records and tests as you can so you are ready to make the change. It is a good feeling to have when you can feel you have left no stone turned!
And as usual NEVER do anything new without the OK from your Oncologist! We are not Doctors just giving friendly advise.
Dear Joe, not to be redundant but as started above we are big believers in 2nd, 3rd and even 4th opinions. This is important with anything but especially with a cancer so rare. No ONC worth his weight will deny another opinion. As always wishing you and your Mama the very best.
Kris, sounds like you are getting your ducks in a row and yes , you look great! I am anxiously awaiting good news!!!! Sending much love and hugs!
Dear Derik, I am very sorry about your Grandma but how fortunate and beautiful that you got to share thoughts and love with her at the end. That is so very special and I believe that by telling her you love her and it was ok to go, you actually released both of you. Yes, I also believe she will always be around you. I am posting a list of Signs a Loved one is around you and usually a beautiful dream will occur first and it is merely Grandma showing you that she is healthy and happy.
After loved ones cross over, they are anxious to let us know they are okay and are aware of what is going on in our lives. If we are not able to feel them around us, they will often give us signs that we cannot ignore. The person who is given the sign usually knows he or she is receiving a message from the other side. You do not have to look for signs – the signs will come to you.The signs our loved ones give us most often are:
They come through as an animal. Our loved ones are able to use their energy to go inside of an animal, such as a butterfly, ladybug, bird, or dragonfly – for a brief period of time. The animal does something it usually would not do, such as land on us, peck at our window, scream at us, etc.
• They place common objects such as feathers, coins, or rocks in our path. Our loved ones like to place things over and over again in our path that were significant to them.
• They give off fragrances. We can often tell our deceased loved ones are around us when we smell their perfume, flowers, cigar or cigarette smoke, or any other familiar smell they had. There is usually no logical explanation of why the smell is there.
• They make songs come on at the perfect time. We know they are around when their favorite songs come on at the right time with the exact words we need to hear.
• They come to us in dreams. One of the easiest ways for them to come through to us is in our dreams. All we need to do is to ask them to come, and they will. However, we should ask them to wake us up after they come, or else we will not remember the dream. A dream that is a true visitation will be very peaceful and we will know it is truly our loved one. We will remember this type of dream in detail many years later. (On the other hand, a subconscious dream may be frightening or feel bad. This type of dream is not your loved one.)
• They allow us to feel peaceful for no reason. When our loved ones are in the room, they usually make us feel so loved and at peace. It usually happens at the most unsuspecting time, so there is no logical explanation for our sudden bliss.
• They place thoughts in our head. Because they in spirit form, our loved ones don’t have an audible voice. Therefore, they give us messages telepathically. Pay attention to thoughts that just “pop” into your head.
• They love to play with electricity. They turn electricity on and off. They like to flicker lights, turn the television and radio on and off, and make appliances beep for no apparent reason.
• They make buzzing noises in our ears. Because our loved ones speak to us on a different, higher frequency, we may hear ringing in our ears when they are trying to get our attention. This is a sign telling you to listen to what they are saying.
The list can go on and on, but these are the most common ways they let us know they are around. If you haven’t received any of these signs, simply ask your loved ones to come to you to let you know they are okay. Be patient .
Charles, my husband had Cyberknife about 2008. He had a Whipple surgery in 2006 and the CC returned 2 years later. Because if the CC location he could not do Chemo and they felt Cyberknife would be better over radiation. It really was a breeze over the other choices. CK nailed it and he was again Cancer free a for another 2 years. It is merely laying under an machine like an X Ray machine and let the CK do its work only in the area of the CC, The side effects were very minimal, mostly just some tiredness. We felt it was a pure blessing!!!