laura-w

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Viewing 8 posts - 1 through 8 (of 8 total)
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  • laura-w
    Member

    Hi Julie,
    I also had H. Pylori several years before my diagnosis. I had the exact same pain, and thought it was my gall bladder. After many tests they finally said no, it wasn’t my gall bladder but said I had an ulcer and treated me for H. Pylori. I thought I had another ulcer when the pain came back 5 years later. They were sure it was my gall bladder Again. I wonder if they were wrong the whole time….

    in reply to: Any experience with xeloda? #66736
    laura-w
    Member

    Hi,
    I have a question about chemo. I am seeing an oncologist on Monday for a 2nd opinion regarding adjuvant chemo. I had a resection in June with removal of ducts, 60% liver and gallbladder, clean margins and no lymph nodes involved. The first oncologist has little experience with CC, and he reccommends Gemzar with Xyloda and a second opinion.
    I am wondering what chemo would be actually doing if there is no cancer present at this time. I’d appreciate any opinions so that after I get my 2nd opinion I can make a decision. Thanks!

    in reply to: External Stent #56604
    laura-w
    Member

    Help!
    I need advice. I have the internal kind of drain with the holes, as well as an external drain with bag. It has been three months and my skin around the opening is sore and red. I also have pain inside if I have to move from laying to sitting. I feel like the drain is trying to come out. I have a cholangiogram on Monday. I wonder how bad it is if they remove the drain and then later it needs to be put back in? They seem like they prefer keeping them in forever. My drain tube has been “snagged” and pulled on several times throughout my various activities . What are the chances of getting it taken out and NOT getting another one?! Any advice would be helpful :)

    in reply to: So glad that I found you! #66616
    laura-w
    Member

    Hi Rena,
    I’m so sorry to hear about your dad. I am new to this site but it is great to have found it! I was diagnosed in June with CC and was able to have a resection to remove the ducts, gallbladder and 60% of my liver. I have had those chills too a couple times. The best thing I have used every day since this has begun is my heating pad with an extension cord which I take every where. Both my husband and I are taking antidepressants that were prescribed while I was in the hospital. Chills with a fever need a trip to the doc asap. It is easy to get an infection in my experience.
    I am from Ohio too, the Akron/Canton area. I am also still debating about chemo. I go for a 2nd opinion on the 26th. It is an individual decision, so whatever your parents decide is best for them. I’m glad to hear that he is trusting God on this. For me, I have complete peace, which I am sure comes from Him.
    I hope your dad and all of you can enjoy your holidays and just take each day as it comes.
    Best wishes,
    Laura

    in reply to: CC patient just found this site #66511
    laura-w
    Member

    Hi everybody, and thanks for your responses. I don’t see a way to reply individually so I will just reply to all here.
    Lainy: My leak IS internal, but I don’t know if I could go with no food to heal. I am at 99lbs, up from 95. I have had a hard time getting my weight back up.
    Marions: thanks for the links.
    Pamela: I’m so sorry that your daughter is going through this. As a mom, I would much rather be the one who is sick. I pray that she gets her surgery or that she is healed some other way.
    Gavin: thanks for the welcome!
    Lisa: I am originally from Canton Ohio and graduated from Massillon! And yes, drains are a pain!!!

    in reply to: Not the best update #66420
    laura-w
    Member

    Hi Tiffany,
    What part of Alabama are you in? I get treated at UAB. How were the original spots treated? I am still waiting to see the oncologist about adjuvent therapy. I hope you hear good news.

    in reply to: Disturbing news story #66091
    laura-w
    Member

    As a patient, I can sympathise with the nurse. While I was in the hospital recovering from surgery due to an abscess I was so tired of being in so much pain, I wished for a shot to put me out of my misery. Thankfully I recovered and am so glad I survived that whole ordeal.

    in reply to: 6 months post op and still in pain #64217
    laura-w
    Member

    I had my surgery in June, still have an external drain and also still have pain. I have a pain in my right rib area where my abcsess was, as well as pain on parts under my scar which I assume is from scar tissue or sore muscles from new use.

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