lbellmurphy

Hi all,
I do have a second opinion consultation next week so I will let you know what I find out. I think my story will be the same. I have decided against chemo and have begun hospice care which is incredibly kind. My family has made my spot in the breakfast nook filled with sunshine and the outdoors. I feel much like a princess.
I am starting to feel more tired but the pain is in control. I have decided that God has perfect timing and I will let go and let God. I am trying to say all the things in my heart that I meant to always say.
I will keep you updated. Laurie
Spring in NY.
The hospice is s ending their videographer over soon.

Hello all thanks for the welcome.
I live in Upstate NY. I am a mental health nurse, I am 54. I am trying to get a second opinion in In Rochester Ny at Strong Hospital.
I was told it is unresectable and I am not a candidate for a transplant. The liver tumor is very large 8 x 4 inches and aggressive. My LFT’s are not bad yet. I have had scans, a biopsy and MRI’s. Bilirubin is normal at this time. The biopsy stated it has come from another source not seen anywhere.
I was told I have 2-3 mos with no treatment maybe and 6-8 months with chemo maybe. I just don’t know if I really want to postpone the inevitable.
My adult children are frantic. My husband is so sad. I am on Oxycontin and dilaudid so I am feeling no pain. I can eat right now. I am really tired and getting weaker. But I am not afraid.
I was happy to talk with others that are facing the same thing.
can anyone give me more info on the Whipple. Don’t know if I qualify or not. Strong is a big cancer center so they may see something else don’t know. I will talk with you all.
laurie